I had my evaluation review on Monday. I walked into a room that looked like a giant SEPTA gerbil maze with a young woman wearing a burqa. She was a recreation therapist. She said she wasn't going to make me do any tests for fear that I may lose my balance. I told her how MS affected my life and how I couldn't drive my car or take three buses over two hours to work. She said I could articulate my problems well but she would put it in simple terms for SEPTA and added some things about not being able to cross a four lane highway or go out in snow and ice because of increased spasticity.
When we were done she said that I shouldn't have any problem getting approved. She asked about my fatigue levels and helped me to contact my insurance company to get approval for a home health aide. I've used a quarter of a million dollars in healthcare services, seen therapists, doctors, etc., spent close to a thousand dollars on people driving me, cooking for me, having my mother call me a warm pile of garbage over and over, and all this time I could have had someone reliable treat me with dignity while helping me when I get too tired to eat or do laundry.
At the end she said to use the paratransit to do fun things, like some people would use it at 2 AM to go home from a nightclub. I said I used to go to a coffee house and draw but was afraid to ask my mom and set her off I was trying not to cry because it seemed I could finally get my life back, this woman went above and beyond and I felt a little optimistic and less suicidal.
When we were done she said that I shouldn't have any problem getting approved. She asked about my fatigue levels and helped me to contact my insurance company to get approval for a home health aide. I've used a quarter of a million dollars in healthcare services, seen therapists, doctors, etc., spent close to a thousand dollars on people driving me, cooking for me, having my mother call me a warm pile of garbage over and over, and all this time I could have had someone reliable treat me with dignity while helping me when I get too tired to eat or do laundry.
At the end she said to use the paratransit to do fun things, like some people would use it at 2 AM to go home from a nightclub. I said I used to go to a coffee house and draw but was afraid to ask my mom and set her off I was trying not to cry because it seemed I could finally get my life back, this woman went above and beyond and I felt a little optimistic and less suicidal.
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