I had an LP done to check on my MS progress while on the Gilenya.
While under X-ray machine, I had to be stuck 3X's , because each time I had terrible "shock" all thru my rt. pelvic region,. buttocks rt. leg and foot. The radiologist had a hard time getting enough fluid. He could not get the needle in or fluid out. It took 3X's. With each stick it felt like what I could only imagine what a Tazer Gun had to feel like! It was so bad I thought I was going to throw up and faint! I became hot allover and clammy feeling.
While waiting in the recovery rm, the pain appeared to be getting somewhat worse so the Dr was called in to access the situation. He told me that the nerves in the areas were probably irritated but not damaged due to the fact that these needles were not the type that were sharp on the end and would not damage the nerves. They simply pushed the nerves aside.
I was instructed to lay flat for 24 hrs.and only get up for the bathroom. The pain seemed to get worse. On a scale of 1 to 10 ( 10 being the worst you ever felt!) it is at least a 10! If I lay perfectly still, I still had a throbbing, burning pain. If I moved in any way it is a very sharp stabbing pain (like that tazer gun would feel like!! Horrible!)!
When I go to the bathroom it is pure hell! Not to be gross but the tissue paper feels like it has huge grass burs in it! Just sitting here writing this is pure hell! I burn, sting, ache so bad I can barely sit here!!
I remember that the Dr did say that the tap was a traumatic tap and the fluid was not clear. It was pink! I wonder if it will mess up the test? I did call my Neuro and let him know. But I will not go back for another one!
I am still getting painful shocks/spasms when I put my foot down the wrong way . Or even reach over my head to get something out of the cabinet. My pubis and down through the rectum feel like I have boils or cuts and they burn! It's hard to get up or sit down. I tend to move very "Gingerly"!
While under X-ray machine, I had to be stuck 3X's , because each time I had terrible "shock" all thru my rt. pelvic region,. buttocks rt. leg and foot. The radiologist had a hard time getting enough fluid. He could not get the needle in or fluid out. It took 3X's. With each stick it felt like what I could only imagine what a Tazer Gun had to feel like! It was so bad I thought I was going to throw up and faint! I became hot allover and clammy feeling.
While waiting in the recovery rm, the pain appeared to be getting somewhat worse so the Dr was called in to access the situation. He told me that the nerves in the areas were probably irritated but not damaged due to the fact that these needles were not the type that were sharp on the end and would not damage the nerves. They simply pushed the nerves aside.
I was instructed to lay flat for 24 hrs.and only get up for the bathroom. The pain seemed to get worse. On a scale of 1 to 10 ( 10 being the worst you ever felt!) it is at least a 10! If I lay perfectly still, I still had a throbbing, burning pain. If I moved in any way it is a very sharp stabbing pain (like that tazer gun would feel like!! Horrible!)!
When I go to the bathroom it is pure hell! Not to be gross but the tissue paper feels like it has huge grass burs in it! Just sitting here writing this is pure hell! I burn, sting, ache so bad I can barely sit here!!
I remember that the Dr did say that the tap was a traumatic tap and the fluid was not clear. It was pink! I wonder if it will mess up the test? I did call my Neuro and let him know. But I will not go back for another one!
I am still getting painful shocks/spasms when I put my foot down the wrong way . Or even reach over my head to get something out of the cabinet. My pubis and down through the rectum feel like I have boils or cuts and they burn! It's hard to get up or sit down. I tend to move very "Gingerly"!
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