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Did you know they destroy MRI's

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    #1

    Did you know they destroy MRI's

    Hi All,
    I came on to let everyone know, that you should get CD copies of all of your latest MRI's.

    I made a appt to a new Neuro, they told me to bring copies of last Neuro office visit notes for 5 years, copies of my last MRI and Written MRI reports. They want to physically see the MRI.

    I go to the hospital for MRI copies on CD (was done in 2006) and they destroy them after 5 yrs!

    I can get copies of the written reports only.

    I will never let this happen again!
    Next MRI I will fill out the paperwork right then and there for copies.

    Just thought I would give you a heads up.

    muppy
    Never pass up a opportunity to pee!
    Tags: None
    #2
    Did you know they destroy MRI's
    Yes.

    That is the reason my Neurologist gives me the MRIs.
    Diagnosed 1984
    “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

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      #3
      Your lucky your neuro has a MRI machine
      Never pass up a opportunity to pee!

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        #4
        I also assumed they saved them on a server. Well, you know what "assume" stands for.lol

        muppy
        Never pass up a opportunity to pee!

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          #5
          Hi muppy1,

          I had a lapse of 7 years when I was not able to get MRI's because of an implanted metal medical device (pacemaker). After it was replaced with a MRI compatible one and I could finally get MRI's again, I requested they put them all (as far back as I could get them) onto the newer format, a CD, so I could take them to my MS Specialist (who is at a different hospital). They used to be kept on a hard film, which was big and bulky. (I feel like a dinosaur now, lol )

          I knew he'd seen the hard copies of the films that I had when I first started seeing him. But, other than supporting my MS dx, the older films didn't matter much to him then because there really wasn't any way to compare them with a current MRI. (I vaguely recall being told the original hard copies the hospital had would be destroyed after x amount of years.)

          Turned they were all saved on a server, and went back to when I was dx'd 10 years prior (2001). They are all on that CD. I never really thought much about that, until now. Guess that is the advantage of a really big hopital. Don't know at what point the hospital stored everything so it could be put in that format, but it is nice that everything is there if I ever need it in the future. (Still have the big and bulky hard copies, but guess the only reason I even have them is for novelties sake .)
          Kimba

          “When you change the way you look at things, the things you look at change.” ― Max Planck

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            #6
            I guess I am lucky. Since 2006, the place I go to automatically gives you the images.
            Kathy
            DX 01/06, currently on Tysabri

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              #7
              Originally posted by muppy1 View Post
              Your lucky your neuro has a MRI machine
              My MRIs are done at the Hospital.
              At my follow-up and after my Neurologist goes over the MRIs the MRIs are handed to me to take home.
              Diagnosed 1984
              “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

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                #8
                I made a habit of getting a CD of my MRI and the Radiologist report from the very beginning. I don't know why I did that I just did. So I have copies and reports of every MRI I have had. Nice to have just in case. As luck would have it my Neuro asked for copy of my last MRI.
                Dx'd 4/1/11. First symptoms in 2001. Avonex 4/11, Copaxone 5/12, Tecfidera 4/13 Gilenya 4/14-10/14 Currently on no DMT's, Started Aubagio 9/21/15. Back on Avonex 10/15

                It's hard to beat a person that never gives up.
                Babe Ruth

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                  #9
                  After the Gulf Coast disaster in 2005, I relocated and was very luck to get DVD copies of my MRIs and MRI reports, even those originaly on film format.

                  However, my then new MS Neuro's office lost all of them! Let your neuro make copies and keep your personal set of MRIs and reports.

                  Since the move to CD format, I'm not sure if my neuro even has equipment to read the old film even if I still had them.

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                    #10
                    I usually get copies but after so many I got lax, and sure enough one I recently needed as well as nerve conduction test results at an old neuro were lost or destroyed!

                    As much as these cost youd think they could send a letter to the last address of the patient with a warning and deadline.

                    What a waste.

                    Comment

                      #11
                      Originally posted by Kimba22 View Post
                      Hi muppy1,

                      I had a lapse of 7 years when I was not able to get MRI's because of an implanted metal medical device (pacemaker). After it was replaced with a MRI compatible one and I could finally get MRI's again, I requested they put them all (as far back as I could get them) onto the newer format, a CD, so I could take them to my MS Specialist (who is at a different hospital). They used to be kept on a hard film, which was big and bulky. (I feel like a dinosaur now, lol )
                      I have my first MRIs, and Kimba, big and bulky might be an understatement I didn't know you could get them put on CD, but since they were almost 15 years ago, nobody seems to want to see them anyway.

                      And yes, in our area, they destroy MRIs that are older than 7 years. But now it's much easier to store the little CD's they have those "cute" little holders for them.

                      It has been my experience, when changing imaging facilities, that they only want the last MRI CD to compare the present MRI CD with. If you use the same facility, they already have the previous MRI in their records.

                      My neuro told me another interesting bit of info last time I had an MRI. I read the report and it didn't mention this one lesion that we keep watch on. In some past MRI reports, they make mention to it in the form of "it hasn't resolved"... or some wording like that. This go, not a word. I asked if that could mean it was gone, and he said many neuroradiologists won't mention a lesion that's stayed the same from one MRI to the next. They will make mention of it, if it's grown or gotten smaller, don't know if that's across the board with radiologists, but I found it interesting.,

                      Comment

                        #12
                        Originally posted by rdmc View Post
                        .......

                        It has been my experience, when changing imaging facilities, that they only want the last MRI CD to compare the present MRI CD with. If you use the same facility, they already have the previous MRI in their records.

                        My neuro told me another interesting bit of info last time I had an MRI. I read the report and it didn't mention this one lesion that we keep watch on. In some past MRI reports, they make mention to it in the form of "it hasn't resolved"... or some wording like that. This go, not a word. I asked if that could mean it was gone, and he said many neuroradiologists won't mention a lesion that's stayed the same from one MRI to the next. They will make mention of it, if it's grown or gotten smaller, don't know if that's across the board with radiologists, but I found it interesting.,
                        rdmc: this is interesting, Ive noticed to they usually dont look or want my past ones other then just previous but I really would like them to look at my older ones to now an see what has changed instead of getting caught in this stable no change thing.....when in fact we read the report and see yes they do mention this or that. Its annoying these things cost so much for so little info and detail.

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                          #13
                          Originally posted by sloth View Post
                          rdmc: this is interesting, Ive noticed to they usually dont look or want my past ones other then just previous but I really would like them to look at my older ones to now an see what has changed instead of getting caught in this stable no change thing.....when in fact we read the report and see yes they do mention this or that. Its annoying these things cost so much for so little info and detail.
                          Many moons ago, there was a neuroradiologist at a certain facility in our area. I saw her for a few years, she has since retired. She was thorough, very thorough. Her reports mentioned every lesion above a certain size, she measured them, compared them to the lesions from the previous MRI as to how they had progressed, or regressed. Since she retired, my reports have never been that detailed.

                          I did have one MRI a few years ago, where the symptoms were so specific that they redid an MRI (looking at a specific area of the brain.) Lo and behold, they found the lesion, and it wasn't small...they said it could also be seen on the previous MRI, but blamed imaging issues on the lesion not being picked up by the radiologistin the previous series.

                          A good radiologist/neuroradiologist can make all the difference in the world, IMO. Also, the difference between the conclusions reached by one neurologist, or another, can vary widely, when they view an MRI. It's not an exact science, that's for sure.

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                            #14
                            mri and radiologist's report

                            My neuro (so great!) always gives me back the CD I bring from my latest MRI. Because he is in a different health care system from the one where I have the MRI done, he relies on receiving the radiologist's analysis of the pictures. And that famous healthcare system (U of Pa) has pathetic administrative communications, we have to nag repeatedly to get it passed on. And I've learned how to nag really well over time. As for storing the info, he stores the radio's reports, but there is so much data on the MRI CD itself that he gives the raw report back to me. I have all of them since 2003, when I got the first dx, even if they are irrelevant by now.

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                              #15
                              As I've "morphed" into SPMS, my neuro doesn't want any more MRI's.I don't care as I've never minded them(always fell asleep).& I'm off all meds.He keeps my old ones.

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