How long has anyone gone with no relapses?

[Jola]

Hi Mamabug,

You are correct in what you are saying.

I was on copaxone, then avanex, now tysabri (even though im jc+). Nothing is slowing this down. Neuro is considering chemo.

[palmtree]

Jola, my heart goes out to you. That's a tough spot to be in when you are on the strongest DMD and it's still not working. I hope you get some help with the chemo. MS progression is no fun.

[rainykatie]

I was dx in feb 2012. I have not had a relapse since! I have had 2 new small spots on MRI but no new symptoms. I do get mild symptoms in the heat like dizziness tingling hands and a 'weird' feeling in my right leg. I'm very lucky!

[Mthusiast]

I guess I'm curious as to what constitutes a relapse or flare? I had an episode of double vision in 1987, and no other symptoms that stand out as possible flares until some foot numbness in 2010. Other than a slowly worsening bladder issue, that was all I experienced during that time frame. I was finally diagnosed in 2013, and started Aubagio. I have not had any change to my MRI since, just the same 2 small lesions. Obviously everyone has a different degree of development. I say to think positively as much as possible!

[dck696]

I was diagnosed with RRMS in 2006, and have never had a relapse.

I thought that was a good thing, but last year my MS specialist changed my diagnose to PPMS, which explains my lack of relapses.

[owlnona]

I was DX in 2000, started on Rebif,I had 2 flairs,than my neuro added Novantrone. It did nothing for me. Than I had such a bad flair I was 6 weeks in hospital & rehab,It all happened from an Ecoli infection my DD & G'd.also got. My neuro even got the CDC involved.All from a restaurant baked potato.
Than I had a sever injection site reaction,I was in & out of the wound care center for weeks,after that Irefused any more DMD.
That was 2yrs.ago & my neuro tells me I've slid into SPMS.It's fine I'm on a Rollator & wheelchair.So it's been 3 years w/no flair & I;m content & well cared for. You just never know w/ this MonSter.

[Jules A]

I was diagnosed with RRMS in 2006, and have never had a relapse.

I thought that was a good thing, but last year my MS specialist changed my diagnose to PPMS, which explains my lack of relapses.

Excellent point. I haven't had true a relapse in 10 years since starting Copaxone however there are minor symptoms daily so does that mean I've gone to SPMS? or that my RRMS is quiet for now?

Don't get me wrong in either event I am so thankful that I am still mobile, independent and have been able to continue working at a break neck speed but of course the potential for misery looms over my shoulder thanks to this horrific diagnosis.

[wkikta]

i have not had a relapse since diagnosis in Dec 2000. Avonex since Jan 2001. I have lost a lot of function over the years though. Looking at my health history I have probably had MS since the mid 90's at least.

[dyin_myelin]

i have not had a relapse since diagnosis in Dec 2000. Avonex since Jan 2001. I have lost a lot of function over the years though. Looking at my health history I have probably had MS since the mid 90's at least.

My father dove the Andrea Doria. He's mentioned in the book Shadow Divers.

[wkikta]

Andrea Doria, 1996 Officers China, 1998 Winter Garden Window

[sloth]

Good post, I appreciated reading the replies thanks for sharing folks.

I thought perhaps my mri's and no change since o7 was weird and started to question the ms thing but on my frequent sx days I think yeah ms for sure.

I don't quite get how there can be so many almost daily sxs and no lesion change. I mean Im glad or whatever its just weird.

I do get new sxs but no new lesions so odd. I did read tho' that a certain percentage of lesions do not show up on mri.

Anyway thanks for the post, I don't feel quite so weird anymore...at least not in the dx dpt.

[RockysMom]

Eleven years.

[dyin_myelin]

(OT)

Andrea Doria, 1996 Officers China, 1998 Winter Garden Window

I just noticed you're in Boynton Beach, do you mind if I ask what dive shop you go to?

[Jennagain]

Never Know

I have just gone eight years between my first and second relapse. Original MRI back then showed 4/5 lesions on the brain, but a couple of follow-up MRI's over the following year showed nothing so they dropped the diagnosis and never gave me any other explanation.

Eight years with no relapse is a long time, long enough to put MS out of your mind, but wham here we go again! Who knows if there are permanent lesions now. Afraid to go through this roller coaster ride again for fear history will repeat itself.

[SEAMSGUY]

Progressive MS

I'm very grateful and truly happy for those of you who have RRMS and are symptom free (or usually symptom free).

I hate to sound so self serving, but I wish more of the world knew about those of us who have a progressive form of the disease. Every day is some degree of brutal and difficult and pain filled.

I am not counting on a cure in my lifetime, but oh what a blessing that would be!

(PS- none of the DMD's I have taken have ever worked, but I continue because of the advice "yes, but you might be a whole lot worse if you didn't take them! But no one really knows)