dx 2011
3.5 years later
In permobil chair, left side issues now noticing right side similarities of when disease began.
Doctors think its progressed rather fast, i mean they noticed a difference of me being inpatient in rehab for 3 weeks saw my weakness grow in that time.
Anyone else progressing this fast?
seemingly still saying i have rrms.
last doctor visit i said things are getting weaker i feel like i am slowly dying, although i cant say how that feels, he says he can understand that.
he i think is also scratching his head as no meds seem to work.
Steroids work but weakness afterwards make me think the steroids caused large part of issues.
My neuro is hard to get hold of even when i need him 6 - 9 Months for appt's.
So for now i am frustrated and lost..
3.5 years later
In permobil chair, left side issues now noticing right side similarities of when disease began.
Doctors think its progressed rather fast, i mean they noticed a difference of me being inpatient in rehab for 3 weeks saw my weakness grow in that time.
Anyone else progressing this fast?
seemingly still saying i have rrms.
last doctor visit i said things are getting weaker i feel like i am slowly dying, although i cant say how that feels, he says he can understand that.
he i think is also scratching his head as no meds seem to work.
Steroids work but weakness afterwards make me think the steroids caused large part of issues.
My neuro is hard to get hold of even when i need him 6 - 9 Months for appt's.
So for now i am frustrated and lost..
Comment