My neuro doc (who says he has treated hundreds of MSers) told me that, when reviewing my complete list of symptoms (about 20 or so), they seemed 'disconnected'.
I am trying not to react too much to much of what he said (because, basically, by the end of the appt, he was saying that I am not 'bad off enough' to warrant any more testing)...but this disconnected thing is still bugging me. I mean, if it is MS, isn't that pretty much part of it...that depending on where the lesions are located, the symptoms may seem disconnected?
Sorry to say, but I came away from that appt, feeling very invalidated...and just about to give up on any further diagnosis. And...I can't see an 'MS Specialist' (at least not here at UNM), until I am 'diagnosed' by this neuro doc. All in all, I am in a rock and a hard place, I guess.
I guess I need to just wait until I can't walk or talk, or whatever, before I go see him again (and then of course, all my symptoms will be better by the time of the appt...lol!).
Sorry for the vent, folks...maybe I should have posted this in the Limbo section. Any advice would be appreciated. Love and Light, all! Jan.
P.S...I do believe everything happens for a good reason, so I am still working on that part!
I am trying not to react too much to much of what he said (because, basically, by the end of the appt, he was saying that I am not 'bad off enough' to warrant any more testing)...but this disconnected thing is still bugging me. I mean, if it is MS, isn't that pretty much part of it...that depending on where the lesions are located, the symptoms may seem disconnected?
Sorry to say, but I came away from that appt, feeling very invalidated...and just about to give up on any further diagnosis. And...I can't see an 'MS Specialist' (at least not here at UNM), until I am 'diagnosed' by this neuro doc. All in all, I am in a rock and a hard place, I guess.
I guess I need to just wait until I can't walk or talk, or whatever, before I go see him again (and then of course, all my symptoms will be better by the time of the appt...lol!).
Sorry for the vent, folks...maybe I should have posted this in the Limbo section. Any advice would be appreciated. Love and Light, all! Jan.
P.S...I do believe everything happens for a good reason, so I am still working on that part!
Comment