Hi everyone,
I’m speaking on behave for my sister who is in Rehab after having a MS Stroke-like attack January 4th 2014.
The Neurologist said she has Tumefactive MS because of the size of the lesions on her brain MRI.
They did a Brain biopsy to rule out Tumors.
She’s on Copaxone and a steroid taper right now.
Her whole right side of her body went numb, and she couldn’t talk, only mumble
She’s gotten feeling and movement back in her leg probably 75% and her arm is about 50%.
Her speech is getting better but she still has a hard time talking.
What I gather about Tumefactive MS is that it’s a rare form of MS diagnosed by the size of the lesion.
These are some questions she has:
1. Has anyone here been diagnosed with Tumefactive MS and is Copaxone a good DMD for this given the low success rate for RRMS? Or should she be on a higher success rate DMD?
2. Anyone who has had the stroke like attack, how long did it take for your speech to come back, and are you back to talking as before the attack?
3. I know you can’t put a time frame on this but she would like to know with all the given information above, what’s her chances of being able to walk by this June for her son’s first birthday.
Right now she can take baby steps with a cane, but she wants to walk without it.
And any other information or input would be greatly appreciated, Thank You.
I’m speaking on behave for my sister who is in Rehab after having a MS Stroke-like attack January 4th 2014.
The Neurologist said she has Tumefactive MS because of the size of the lesions on her brain MRI.
They did a Brain biopsy to rule out Tumors.
She’s on Copaxone and a steroid taper right now.
Her whole right side of her body went numb, and she couldn’t talk, only mumble
She’s gotten feeling and movement back in her leg probably 75% and her arm is about 50%.
Her speech is getting better but she still has a hard time talking.
What I gather about Tumefactive MS is that it’s a rare form of MS diagnosed by the size of the lesion.
These are some questions she has:
1. Has anyone here been diagnosed with Tumefactive MS and is Copaxone a good DMD for this given the low success rate for RRMS? Or should she be on a higher success rate DMD?
2. Anyone who has had the stroke like attack, how long did it take for your speech to come back, and are you back to talking as before the attack?
3. I know you can’t put a time frame on this but she would like to know with all the given information above, what’s her chances of being able to walk by this June for her son’s first birthday.
Right now she can take baby steps with a cane, but she wants to walk without it.
And any other information or input would be greatly appreciated, Thank You.
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