Announcement

Collapse
No announcement yet.

need some advice.

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    need some advice.

    hello everyone , not sure where to start im new at the asking questions thing. I was told I possibly had ms 15 years ago. I went to bed one nite,everything ok. next morning I awoke to double vision. my right eye wouldn't track the same as the left. they did an mri or a cat san, cant remember which . they said it was 90 percent sure it was ms but needed to do a spinal tap. lol well that totally freaked me out. I was thinking well ms is incurable so why stick needles in my spine. so after about a month the double vision went away but I noticed my vision was sorta blurry . so I got glasses which fixed that.

    I was a farm machinery mechanic, which required a lot of climbing and exertion. I felt no problem after my eyesight returned . then about 5 years ago I started noticing getting more tired and exhausted very easily. about 3 years ago I got laid off , and then the place I worked went out of business. I was actually sort of thankfull due to the massive weakness in my legs and back . id sometime fall asleep in my service truck at lunch and feel like I was walking thru mud all day. so after being laid off I gained weight due to inactivety .

    I am also very sensitive to heat . anything above 72 and I feel sick to my stomach and feel like im passing out. it seems since the inactivety started I have slowly getting worse . now I can hardly walk to the bathroom without being winded and my legs feeling like rubber. steps are like mountain cimbing . im very unsure on my feet especially over uneven ground. ive never been to a doctor for this. [ after the double vision]. after getting laid off I lost my med coverage so further diagnosis isn't possible now .

    does this sound like how ms progresses. would like your recommendations of what to do now thank you everyone.

    ** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **

    #2
    Hate to say it, muzzy, but that would be a "yes, it does, more or less exactly", from me.

    I'm not a doctor, though.

    As for what to do now, I don't know how your health service works in your part of the US, but I do think you should go to a doctor, see a neurologist and have another MRI. You don't have to have a lumbar puncture to get a diagnosis.

    I'm guessing you're a man and like many men, won't go to a doctor unless they feel truly terrible. And often not even then.

    Go and get diagnosed; if it is MS, many of the drugs you can take have pretty generous co-pay arrangements.
    And best case outcome, it might not be MS. It might be something they can fix.

    Good luck.

    Comment


      #3
      I have to second what Thinkimjob said. And if you're not working, have you checked out what your coverage would be under ACA? You might even be eligible to get a partial or even total subsidy. I don't know what your circumstances are, but if you can even slow this awful disease down, isn't it worth looking into?

      Take care, and good luck.
      PPMS
      Dx 07/13

      Comment


        #4
        Hi, Muzzy. Unfortunately, I agree with the other posters - definitely sounds like MS Progression.

        What about Medicaid or Medicare? You definitely need to get on a Disease Modifying Drug (DMD) if possible, and that would only happen with a diagnosis (and some type of insurance).

        So sorry you are having it tough...hang in...and know that we are here.

        Comment


          #5
          resources

          The Multiple Sclerosis Association of America often helps with one neurology appointment per year and usually one MRI per year. This can help with the diagnosis process.

          http://mymsaa.org/msaa-help/mri/

          Large teaching hospitals often will take patients without insurance.

          I concur with the other posters, that if this is MS medication can help. There is a lot of assistance available there, too.

          We can only give suggestions as to what we have experienced. Only a healthcare provider can give you a diagnosis and prescribe for you.

          Don't be stubborn, reach out and get help.
          God Bless and have a good day, Mary

          Comment


            #6
            Wow Muzzy! You joined us 5 years ago and this is your first post. You are a quiet one. I wish you the best however you decide to proceed. Let us know what happens.

            Comment


              #7
              Ah ha, well spotted mable! Which leads me to think that you, my dear muzzy, have been worried about this for quite some time.

              There is no cure, but there is stuff that might help.

              Comment


                #8
                Muzzy-Just about every symptom out their can fit into the MS definition. Please do yourself a favor and go back to a Neuro. Cincinnati has an MS Specialist.

                Spinal Taps are no longer an absolute requirement. It is best to know what is going on. Lots of things can mimic MS.

                Best of luck to you.
                Katie
                "Yep, I have MS, and it does have Me!"
                "My MS is a Journey for One."
                Dx: 1999 DMDS: Avonex, Copaxone, Rebif, currently on Tysabri

                Comment

                Working...
                X