Dystonia

[seal]

On a recent visit to my new Neuro, he noticed some symptoms that he attributes (potentially ) to "dystonia". I have been ready up on Dystonia, frankly, I'm surprised no one else picked up on it (big neck, SEVERE teeth clenching, few other good stuff).

I have a consult with a movement disorder specialist (how many different specialist are there, for crying out loud!) in March.

Anyone else been diagnosis with dystonia? What kind of treatment/meds are you on? Any way to be proactive?

As always., thanks for any input!
xoxo

[rdmc]

Hi Seal,

I have dystonia that is secondary to my MS. In other words, it is caused by an MS lesion. Dystonia can be a "stand alone" diagnosis also, it can affect people without MS.

Mine affects one side of my face and tongue (oromandibular dystonia.)

I use benzodiazepenes to help control my spasms. Depending on what part of the body affected, Botox is an accepted therapy.

Hope you get some help from the movement disorder Doc.

[Fed Up]

(how many different specialist are there, for crying out loud!)

Anyone else been diagnosis with dystonia? What kind of treatment/meds are you on? Any way to be proactive?

As always., thanks for any input!
xoxo

At least 14 specialist's...That's how many i have so far.

The most important way to be proactive is thru diet, stretching and exercise. Fight it tooth and nail with exercise and good nutritional choices. as if life isn't hard enough.fed

[seal]

Thanks all for the info.

I seem to have bilateral dystonia (I have bilateral everything!). Can't wait to start something.

I agree, Fed Up, how we keep our bodies in general does seem to help (something I really need to work on,

[sunandmoonschild]

Cervical Dystonia

I was diagnosed with cervical dystonia nearly three years ago. I had a specialist I was going to until our insurance changed and now I'm just going to the regular old doc.

I've got an appointment with a new neuro at the end of this month so I'm hopeful that she'll pick up all these lovely dx's and run with them right to a recovery point... yes I know that's delusional but... hey... why not dream big if you're going to dream, right?

[SNOOPY]

I was diagnosed with cervical dystonia nearly three years ago. I had a specialist I was going to until our insurance changed and now I'm just going to the regular old doc.

I've got an appointment with a new neuro at the end of this month so I'm hopeful that she'll pick up all these lovely dx's and run with them right to a recovery point... yes I know that's delusional but... hey... why not dream big if you're going to dream, right?

Hello sunandmoonschild,

Cervical Dystonia aka Torticollis, Spasmodic Torticollis is most commonly treated with Physical Therapy, muscle relaxers and heat at the neck.

Information about Torticollis/Cervical Dystonia/Spasmodic Torticollis:
http://www.torticollis.org/spasmodic-torticollis.html