After reading many messages that break my heart i wanted to add my thoughts...For those of us living with this disease we all know that some days it feels like it hits us when we are already down. Some days are defined by pain, others random annoyances, and yet some days are hard to move. This disease will chew all of us up if we let it. It can redefine our normal. Make it so we don't remember what the word even means. It can take away our legs and make us hope for the intangible. One thing we should not let us do is become who we are. I live with MS it does not live for me. I can control what it cannot. I can choose to love life and laugh as much as possible. One day at a time. One determination to create small victories. I want to be defined by not allowing anything control who I am.
Today I went to take a nap and found it impossible to get out of bed...I laid awake for a couple hours before deciding that I can not allow this to happen. So i got up and did the dishes, cooked dinner, and played with my kids. It took everything I had but I did it. Tomorrow I will go to work. When I get off I will cook and play with my kids. On Saturday I will take my wife out.
I have MS and my Wife is a stay at home mom. I recently had a terrible flare and I went for steroid infusions while adjusting my work schedule to make up the time same day.
I am not saying this to blow my own horn..I often question my strength and want to give up...I am writing this to hopefully give someone else strength...Be stubborn with me. Go to work and make excuses other than MS. Get out of bed...Do it until you no longer can. Laugh when you want to cry.
Today I went to take a nap and found it impossible to get out of bed...I laid awake for a couple hours before deciding that I can not allow this to happen. So i got up and did the dishes, cooked dinner, and played with my kids. It took everything I had but I did it. Tomorrow I will go to work. When I get off I will cook and play with my kids. On Saturday I will take my wife out.
I have MS and my Wife is a stay at home mom. I recently had a terrible flare and I went for steroid infusions while adjusting my work schedule to make up the time same day.
I am not saying this to blow my own horn..I often question my strength and want to give up...I am writing this to hopefully give someone else strength...Be stubborn with me. Go to work and make excuses other than MS. Get out of bed...Do it until you no longer can. Laugh when you want to cry.
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