please help need input

[mushy44]

I am not diagnosed with ms although I show many of the signs the tremors inability to walk difficulty talking and cloudy mind my doctor doesn't believe me my parents are scared to see me this way I know how I present and honestly I need answers how do I get my doc to believe there is something wrong? How did everyone deal with your diagnosis? Does this even sound to anyone like that's what it is??

[Camsue]

Hi Mushy..I can't tell you if your sxs are related to M.S., but I can tell you if your Doctor isn't listening to you and doesn't believe you ..you need a new Doctor!

I hope it turns out to be something temporary, you need someone to believe, test you and find out what's wrong, then go from there..

Best of luck to you

[Thinkimjob]

Have you been to another doctor? Is the problem your doctor "doesn't believe you have MS" or that s/he isn't taking your symptoms seriously? If you can't walk, that's pretty hard to ignore.

[pennstater]

Sorry to hear how you are feeling.

What has your doctor said about your symptoms, especially the visible ones such a tremor? When you talk to the doctor, I wouldn't mention MS or any other diagnosis. Focus only on the symptoms and how it impacts you. Let them figure out possible conditions and tests needed. Sometimes if you mention a diagnosis, the doctor may think you are presenting symptoms be cause of what you read.

If your doctor does not give you an explanation for your symptoms, ask your parents if you can go to another doctor and get a second opinion.

I hope you get answers soon.

[KatieAgain]

No one here can tell you if you have MS or not. There are many things that mimic MS. If your doctor is not taking your problems seriously, then it may be time to find a new doctor who will explore the issue.

[TerriLC]

Insist on a MRI...if its MS, there will be lesions on your brain. Then you'll know.

[suziq38]

Before you see a doctor, make sure you have good medical insurance first.

You may not have MS, but ask around to see who is a good neurologist.
Meanwhile write a diary of you symptoms for your doctor.

Sad this is happening to you.

I hope that it is short-lived.

[mushy44]

my last flare up he said it was all stress said thats what the muscle spasms were all related to and I understand that some of that may have been my fault and I may have not told him everything that would of given me answers

this was almost a year ago I had the first episode we didn't have an answer for besides stress this flare up I documented everything from what I was doing when I had problems to what the problems were, how long they lasted, and even sleep patterns I went as far as to document when I was stressed and wasn't having problems with it. I have even debated a video of me walking when I have problems because I realize I may not be having problems when I see him.

I work in the Hospital so I get to see him while at work and I try not to work when I am having problems so he don't even see them there. I know no one can tell me if thats what this is but was kinda hoping someone would share if this was something they had gone through or even better everyone said nope sounds nothing like it lol I can hope.

It gets frustrating because I am a single mom so when my parents see me that way they know it scares my kids and my parents don't see me that often. I think my mom wants answers as much as I do but if he didn't believe me last time I want to be armed with facts this time and everything. Luckly this flare up seems to be coming to an end with only having a few problems for short periods during the day.

** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **

[bwmorris]

I have even debated a video of me walking when I have problems because I realize I may not be having problems when I see him.

mushy44, my primary doctor seems only to believe I have symptoms if I show her a video. You should definitely record your symptoms when they're bad, then show your doctor.

I wrote a bit about this, then realized it was so much about me griping about my doctor that I thought I should start a new thread. You can check it out if you want; I'll probably call it "Gripes about my Doctor".

[Myoak]

Mushy,

Your doctor knows damn well something isn’t right health wise. There probably isn’t enough evidence for him to make a diagnosis, but he has a clue not everything is as it should be.

Whatever you do don’t quit your job. Who knows, maybe your doc has financial ties to your place of work and doesn’t want the possibility of someone filing a disability claim in the future. If he waits long enough you’ll just leave or find another job. I hate to be so calloused but life experience has a way of doing that.

Bottom line, your doctor doesn’t know what is wrong with you and shows little interest, for whatever reason, in finding out.

You need to go elsewhere for diagnosis. Someplace outside your present hospital to be sure there is no conflicting interest, IMO.

No one can predict the future. What if you become worse and cannot work to present capability? You need a diagnosis of your condition for several reasons, not only for treatment but there are financial reasons which could become critically important for you and your children.

Your Mom knows something is wrong. Get her to help you even more, especially help to see a neurologist outside the system you work for. The lead time to see a neurologist can be several months so make an appointment and keep it. Even if it is in a different city, different health care group or whatever.

By the way, your illness is not your fault so quash the thought, it isn’t true. Be clear and 100% honest with your new doctor; one I hope you will soon find.

Think of your kids and act. Your present doctor has done as much as he is going to. Time to see a specialist. Time to get another opinion if your present doctor is a neurologist.

Talk it all over with your Mom, she will help you.

Best to ya.

[KatieAgain]

What I don't understand is that you work for a hospital, your doctor sees you everyday, but you don't go to work when you are having symptoms. I know I am missing something here.

[brothrgoose]

WOW!

Your story reminds me all too much of mine!

First: you need a new PCP.
Second: see if you can find a Neuro that specialises in MS ( ideal, but not a must must)

I had sx for over 15 years to the point, after about 7 years and having my PCP AND BOYFRIEND ( now husband) suggest I see a psychiatrist!

I googled MS one night, it printed 3 pages. I took a green highlighter and marked all the symptoms I had. WhenI was done, I had 3 green pages!!!

I took those to a Neuro who STILL said I didn't have it, BUT, he ordered the MRI and I had a Dx 2 weeks later!

Try it...getting the Dx srunk, but I knew what I was up against which was a big relief!!!

Good Luck!