Emily,
I'm so sorry your visit to the urologist yesterday didn't help. Not sure where that possible endromitiosis dx came from. You should still be able to pee!
It's good someone actually finally 'tried' to do a bladder scan to see how much urine you're still retaining. Good grief that a 'nurse' at a urologist's office couldn't find your bladder. It is there! I've had plenty of them done at the hospital and rehab facility. Someone always eventually got it, even if it took a few times. Some (RNs, LPNs, or CNAs) were just more adept at getting it because they had had more practice. The RNs could always eventually find it.
A bladder ultrasound is a better way to see what's going on in your bladder. I have a separate appointment with the ultrasound tech to get my kidneys and then bladder scanned. They allow a 30 minute block to do each.
It's very possible you are slurring your words because you are taking too much pain medication. It's terrible this is what you have to do just to semi-function, sometimes. Dilaudid made me so weak I couldn't walk. Hard to say with all your pain if the pain medications are adding to your walking problems. I hope something is figured out, soon, or you're going to get hooked on pain medications.
I don't know what's causing your pooping problem, but MS can affect that, too. Plenty of us have had the your experience because the MS affects the nerve signals to our intestines. Been there and know how distressing that is.
Somehow, a dr. still has to do a cystoscopy to examine your bladder. Even a good urologist can only give a best guess about what may be wrong until that's done. Did that first urology office recommend an antibiotic? Something somewhere doesn't sound right.
I hope brothrgoose has some good advice she can share with you so you can get proper treatment. Never went into the medical profession and now know more than I ever expected from personal experience (former teacher here, too). I feel awful for you.
I wonder if the reason you are still suffering is because you don't have immediate access to a Trauma I hospital and their drs. (Makes me grateful I do)
I feel so bad for all you (& your family) are going through. Your DH & Ellie sound like precious gems.
This thread is about to close, so I hope brothrgoose or you keep us informed in a new thread about how you are doing. I'm keeping you in my prayers!
I'm so sorry your visit to the urologist yesterday didn't help. Not sure where that possible endromitiosis dx came from. You should still be able to pee!
It's good someone actually finally 'tried' to do a bladder scan to see how much urine you're still retaining. Good grief that a 'nurse' at a urologist's office couldn't find your bladder. It is there! I've had plenty of them done at the hospital and rehab facility. Someone always eventually got it, even if it took a few times. Some (RNs, LPNs, or CNAs) were just more adept at getting it because they had had more practice. The RNs could always eventually find it.
A bladder ultrasound is a better way to see what's going on in your bladder. I have a separate appointment with the ultrasound tech to get my kidneys and then bladder scanned. They allow a 30 minute block to do each.
It's very possible you are slurring your words because you are taking too much pain medication. It's terrible this is what you have to do just to semi-function, sometimes. Dilaudid made me so weak I couldn't walk. Hard to say with all your pain if the pain medications are adding to your walking problems. I hope something is figured out, soon, or you're going to get hooked on pain medications.
I don't know what's causing your pooping problem, but MS can affect that, too. Plenty of us have had the your experience because the MS affects the nerve signals to our intestines. Been there and know how distressing that is.
Somehow, a dr. still has to do a cystoscopy to examine your bladder. Even a good urologist can only give a best guess about what may be wrong until that's done. Did that first urology office recommend an antibiotic? Something somewhere doesn't sound right.
I hope brothrgoose has some good advice she can share with you so you can get proper treatment. Never went into the medical profession and now know more than I ever expected from personal experience (former teacher here, too). I feel awful for you.
I wonder if the reason you are still suffering is because you don't have immediate access to a Trauma I hospital and their drs. (Makes me grateful I do)
I feel so bad for all you (& your family) are going through. Your DH & Ellie sound like precious gems.
This thread is about to close, so I hope brothrgoose or you keep us informed in a new thread about how you are doing. I'm keeping you in my prayers!
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