Originally posted by kellygrn
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I'm assuming your info was for me since I mentioned autonomic dysfunction. I don't have dysreflexia although they thought so at first because of the spikes, even when I'm sleeping. However, it's good for folks to know that autonomic dysreflexia can happen to an MS patient...I they used to believe it only happened to folks with SCI, but now have learned otherwise.
I have clonidine on hand to bring down the bp when it spikes. But after suffering some bouts of SVT as well, the latest theory is it has something to do with a medulla lesion that somehow doesn't allow my bp or heart rate to be controlled normally, once they take off, there's no turn off signal from my brain..so I take meds (Clonidine and Atenolol) and wait for them to kick in....if they don't within a reasonable amount of time, I have to go to the ER, and they can use medication to snap me out of the svt or to bring down the bp. Something to do with baroreceptor failure (I think that's what it was named...a little foggy on the proper name right now).
But to add to the subject, I'm the kind of person who wants to hear the worst that can happen, that makes it easier to process for me. And there are worse things than SUDMUS, just watching those videos of Annette Funicello made me aware of that.
Also have known a couple of folks whose MS was totally debilitating, so I know how bad it can get.
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