having a really bad day

[LostCupcakes]

it literally took me over an hour to get up from the toilet to have enough strength to stand to use my walker to get out of the bathroom to my wheelchair in the hall. last night i fell trying to do the same thing and had to call the firemen to come help me up. i just seem to be getting worse and live in a house that is not wc compatable, but i can't get a new house. i guess i'm just venting thannks for reading

[22cyclist]

I am so sorry! You deserve to vent! Do you think you would qualify to have help come in to assist you? I don't know if you are on Medicare or not (Disability)? Sometimes they offer some services, sometimes not. Sounds like you could use it.

Are you all alone at home? I am sure sorry you fell last night.

It is sad that disabled people in the US are left alone with no help. I wish I had some comfort for you. I can only offer sympathy and a wish for better days!

Hope it gets better soon!
Hugs
Lisa
Moderation Team

[Seasha]

I am so sorry LostCupcakes you had such a horrible experience last night! I see you are from Texas. Here is a link from the NMSS Chapter in your area. http://www.nationalmssociety.org/cha...er-/index.aspx

It might be helpful to call and talk to someone and see what services they offer for someone in you situation. It's worth a try!

You take care of yourself and stay safe

[LostCupcakes]

thank you for the kindness and info. my home situation is a bit unusual and unfortunately i cant talk about the specifics in case what i say gets to the wrong person. i do have help sometimes but even my help can only help with some things, they cant help me if i fall. i'm pretty much 250 pounds of dead weight so it takes the combined efforts of at least 2 firemen to get me off the floor. ugh thats so embarrassing

[fishead]

Lostcupcakes,

{{hugs to you}}
I am so sorry you fell. At our "younger ages" it IS embarrasing to need help getting up. I hope you do call the Texas NMSS chapter. Ask to speak to a social worker, as they can point you to personally-specific resources.

[mjan]

Oh dear, your story is heartbreaking.. I feel for you!!

And are you alone?

You may need to consult your doctor. You have safety issues and that qualifies you for help I bet.

Just know that I am glad you reached out to us.. we're always here for you, know that ok hon?

Warmly, Jan

[poohb3ar]

bless your heart!

I know falling can have repercussions for a long time
i pray that you are ok and that you can get the help you need soon.
sounds like you are getting up at night to pee. Would it help to have a portable pottychair by bed so wouldnt have to use wc to get to bath then walker to toilet. just an idea.. i know falling during night is more common than day plus more embarrassing with firemen and you in pjs
take care and God bless ya!

[LostCupcakes]

Had to call the firemen again tonight trying to get out of the bathroom. the really bad thing this time is i was being helped by two family members and i still fell. once my legs give out there's no recovery, i'm going down.

[fishead]

Lostcupcakes,

Perhaps it is time that you invest in a seat for you "bathroom needs" (I can't remember name of them, but they have a "bucket" underneath the seat, that you can urinate/etc in). I know they make them, and you could put it in an area that you anchor some "safety bars" (to help you steady yourself as you sit and stand). Sounds like you really need something like that.