I'm at the end of my rope here. So, I was dx quickly (May 2012) by a neuro who didn't pay a lot of attention to anything I said and had an awfully big ego (I'm THE Man!). Then he disappeared for over five months (which I later found out was personal issues - can understand that).
I go to Hopkins to a neuro I liked - who decides that, although he confirms I have MS, since my lesions are small, he feels my symptoms are psychogenic....? He wants me to find local neuro.
So, I find local neuro who seems to actually listen to me and be willing to give me some help - til she gets letter from Hopkins neuro saying my symptoms are psychogenic. She does not have, nor ordered, any test results, images, etc. to base any dx on, btw. She tells me, truly with a sneer in her voice, that I don't have any *real* symptoms.
I get my records from Hopkins. It details where all of my lesions are - every single one correlates to symptoms I have. How does that add up to psychogenic?
So - I feel better about the dx, they had me thinking I was crazy again for awhile there. But, I don't feel good about any of these neuros.
Right now I have an appt sched with the local neuro at the end of Feb. And the geniuses at the hospital scheduled me for an appt with the original neuro (The Man) in April, even though I told them I don't see him anymore.
Do I bother with the sneering local? Go back to the Man and put up with the attitude I'll get for even going elsewhere? Or go down that confusing road to find another (maybe even a wholistic neuro of some sort who could understand me? I can dream, right)
I go to Hopkins to a neuro I liked - who decides that, although he confirms I have MS, since my lesions are small, he feels my symptoms are psychogenic....? He wants me to find local neuro.
So, I find local neuro who seems to actually listen to me and be willing to give me some help - til she gets letter from Hopkins neuro saying my symptoms are psychogenic. She does not have, nor ordered, any test results, images, etc. to base any dx on, btw. She tells me, truly with a sneer in her voice, that I don't have any *real* symptoms.
I get my records from Hopkins. It details where all of my lesions are - every single one correlates to symptoms I have. How does that add up to psychogenic?
So - I feel better about the dx, they had me thinking I was crazy again for awhile there. But, I don't feel good about any of these neuros.
Right now I have an appt sched with the local neuro at the end of Feb. And the geniuses at the hospital scheduled me for an appt with the original neuro (The Man) in April, even though I told them I don't see him anymore.
Do I bother with the sneering local? Go back to the Man and put up with the attitude I'll get for even going elsewhere? Or go down that confusing road to find another (maybe even a wholistic neuro of some sort who could understand me? I can dream, right)
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