MS emergencies??

[MrsJohnson]

I need some help I am having a major relapse. I Has an MRI done in Aug I think it was and it showed no changes. I had 3 days of steroids and it helped.

I have been having tremendous nerve pain and itching. My neuro will not script any meds. I am taking 50 mg's of tramadol a day and 20 of baclofen 4 times a day.

This is NO help. every day brings another rapid decline.
RAPID decline.
I have not slept or eaten really in the last day much because of pain.
yougert.Pizza the other night it gave me diareharra. I don't know why.
I am in so much pain. I called him back and he will not script anything I do not know why. I am so weak I was walking normal a few days ago for exercise.
I am now having trouble talking???
I am scared. My BP has gone has gone up a few times because I think I just got in so much pain I was going to pass out.
I have never been so ignored during an MS flare. I have never had one this bad.

If I go to the ER I won't see him or any neuro

[Jules A]

I wonder if a pain specialist would be a better option for you?

[lorib]

I'm sorry for what you are going through!! Does your neuro think it's not your MS? It seems like if he isn't doing anything for you then you should see someone else, possibly a pain specialist like suggested above. Or if you are desperate maybe going to the ER will help you to not feel so helpless and help ease your anxiety because at least you are doing something to try to alleviate the pain.

[rdmc]

If your level of pain is such that you cannot get relief, and are not eating or sleeping, then an ER can probably help in getting the pain under control, but it will only be a temporary fix.

A pain specialist is a good idea...but it might take awhile to see one.

Nerve pain isn't addressed with regular pain meds, so I'd be seeking another neuro or your GP to try to get on some meds for neuropathic pain. Baclofen can handle pain from spasticity, but it sounds like neuropathic, especially since you're having other sensory issues like itching.

Usually for that they use anti-convulsants, or anti-depressants.

I think pain in MS patients is an underaddressed part of treatment...just my 2 cents. I didn't used to have much pain but the longer I've had the disease, the more pain I've had and that includes both muscular and neuropathic. And I see by your tagline you've been dealing with this for a long time.

I hope you've found some relief.

[MrsJohnson]

YES..THIS MAN IS A( PAIN) specialist!. I was on valium and vicodin and Baclofen. Read the fine print on that one. I can't get in to another neuro. The other neuro's are in the same practice as he is. The won't take his patients. I would then have to go WAY out. I probaby could not get ty..
He took me off of Valium and the vicodin a and switched the vicoden to tramedol.
This is fine, I prefer it to vicoden. I think it's helps better than vicoden..as to the nerve pain I don't know. I was not having it then.
He took me off valium and kept me on baclofen. I still have some baclofen. HE HAS NEVER DONE A NEURO EXAM.
WHY I DON'T KNOW.. HE SAYS HE DOES NOT TREAT ANXIETY. IT WAS GIVEN FOR SPASMS.
Anyway he says it's the MS. That I have to start TY. I have my Appt set up. My ins has approved it. FOR now.It's the best I can do. I eat a little I am loosing about 1-3 lbs a day. I just can't eat. I just can't chew. I can't drive I can't stand food of any kind. I can't explain if it's the numbness in my stomach or my mouth. This is a rapid flare.
I have not asked him for a narcotic. I have asked for steroids. He says no..I have not been to my GP as he does not normally override my neuro and I have had no transportaition.
When I have a ride I can't get IN. I have thought of an ambulance. I thought I was going to pass out a time or two. But that passed. I think I will make it. someday. I hope I will look back on this and Wonder how!!NOT today. I am going to get in to my GP when I can. I am thinking Elavil for the pain. When I get well enough to get to him. He is a pretty good dr. NOT great, the er dr is ok too.. but this is not really what they do.. but at times I just don't think I can hang in there.. God Bless US all with this disease.. I know you all go through this and more.. Thanks and any suggestions will help. I have lived a lot of yrs with a very mild case NO More blindly denying what it can do..

[MrsJohnson]

I am sorry I messed that post up so bad. He is a pain specialist and neurolgist. That is why I chose him about the other's in this practice. Now they will not let me chose any of the other's.
Meaning I would have to travel too far. I could maybe do a consult way off. (not a scripting dr) I don't know. I have thought of everything in the way of how to get another neurologist and still get a medication and ms med.

One would think I was wanting some sort of street drug, like a junkie. He has not spent as much as 4 minutes in the room with me. It's sickening, and frightening.But I am resigned to the fact I can't fix it. I do have a car. I am just to sick to drive it! One way to save gas.
Tysabri at this time is my only hope, this is a new relapse I have a good history.
it's recent. New damage. I am trying so hard to turn it over to God.
I have to stay able to take care of myself and be independent. Whatever that means. I just want to be somewhat comfortable.
I can't take those seizure meds. I am already on one for migraines.. it will have to be something like .. elavil. Nortriptaline I FORGOT HE TOOK ME OFF OF that too. I was on that a small daily dose. I had been on that for some nerve pain/spasm in my feet. NOTHING LIKE WHAT I AM HAVING. I am not sure the other neuro I was with ever got down what was spasms and what was nerve pain.
I finally decided it was never bad enough to take anything really.
Lyrica made me totally numb.. would be a blessing Maybe I don't know.
Cymbalta I don't know.Did nothing but make me sick. He will not try anything. Said no ty or nothing.

[Tracelyn]

I am sorry to hear you are having such a hard time.

I have no suggestions except that if you are unable to eat and the pain is too much please go to the ER. If you need, call 911 for a ride. There is no reason you should suffer as you are because your doctor will not treat you with appropriate medications.

[Jules A]

One would think I was wanting some sort of street drug, like a junkie.

Unfortunately I encounter many patients who treat valium and vicodin as if they were street drugs and in fact they both command quite a price on the street which makes it hard for those that truly need them.