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    #1

    My Wifey Needs Help

    So over the past two months my wife has began to experience serious signs of MS. Six years ago she was diagnosed with Fibro and informed that the Dr. didn't think it was fibro and thought the diagnosis would change in the future. Her symptoms then progressed into what is now a textbook case of MS.

    So, this Dr. that she has been seeing conducted an MRI of her head and neck, and a VEP-EEG. We called about the results of the EEG and was informed that it hadn't been read a week later. So we call this morning, and his office states "everything was normal, he doesn't need to see you back". My question is what the hell do we do now? Just because he said everything is fine didn't make her symptoms go away. Is there a definitive test for MS?

    Second question, if there is anyone on here from southern or central Ohio, who is the best Dr. to see for this. We are not saying it is MS, just that it sure looks like it and want help. Any words of wisdom would be appreciated. Thanks!

    Travis
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    #2
    Time to find another neuro.
    techie
    Another pirated saying:
    Half of life is if.
    When today is bad, tomorrow is generally a better day.
    Dogs Rule!

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      #3
      Two words:

      second opinion! Call the MS Society for a list of MS Specialists in your area.

      No, my understanding is there is no definitive test for this MonSter but ... there is a definitive list of sx called McDonald Criteria. Others can explain all of that much better than I.

      I would also recommend getting a copy of her medical tests & doctor's notes for your own use. The specialist will need these also.

      Best of luck to you & your wife on this journey. Please come here with any questions - while we aren't doctors this group has a wealth of knowledge & personal experience!
      DX 10/2008
      Beta Babe 12/2008-07/2013
      Tecfidera 07/2013-01/2018
      Aubagio 01/18-09/20
      Ocrevus 09/20-present

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        #4
        I am not an expert, but as a MS patient, this is what I would now do

        You can either go to UC, and have your family physician give you a paper to have a doplar ultrasound. Or you can call Dayton Interventional Radiology, and tell them what you're dealing with. They can do the doplar ultrasound at their office at Kettering.

        I know it's a strange medical world now with MS. And I am definitely not an expert. But please get a doplar ultrasound, because (in about 30 minutes) they can determine if there are blockages in the veins in the neck causing these problems. I had the MRI's years ago, one time one took six hours. And if I would have been more informed, in my opinion I would have had the doplar ultrasound in the beginning. It is less time, doesn't hurt, etc. Anyway, I don't want to make it more difficult for you, but they only recently became aware of the blocked vein importance. Again, just my opinion, no medical authority.

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          #5
          Hi Travis,

          Are you close to Cincinnati? I went to the The Waddell Center for Multiple Sclerosis for my second opinion. You can google them, they have a website.

          Monika

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