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flare up...relapse? i always feel the same

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    #16
    Originally posted by Tomjadg View Post
    Hi Lisa
    I'm the same as you, except for the headaches.

    2 years 3 months since Dx, did Rebif for 7 months, and Ty for the past 15 months.

    Although my current problems continue to worsen, the only plus is that my MRI's stay the same.
    Never "flares" or improvement.
    I am confused...is a "stable" MRI a good thing or a bad thing?

    Why would symptoms get worse and an MRI remain the same...wouldn't worsening symptoms result in more lovely plaques?

    I have had this disease officially for almost a decade and I don't know if I am doing good or bad for a person who has M.S.! I suppose there are probably about a million different indicators, but since an MRI does not seem to be one of them, I stopped getting them!
    Tawanda
    ___________________________________________
    Diagnosed with Multiple Sclerosis 2004; First sign of trouble: 1994

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      #17
      Originally posted by CGMoonbeam View Post

      I can't really explain the problem; I just feel like crap.
      Me too! Good thing I'm not a contender for First Lady because this is the ONLY way I can seem to articulate my M.S. to anyone willing to ask me what I'm dealing with.
      Tawanda
      ___________________________________________
      Diagnosed with Multiple Sclerosis 2004; First sign of trouble: 1994

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        #18
        Originally posted by Tawanda View Post
        I am confused...is a "stable" MRI a good thing or a bad thing?

        Why would symptoms get worse and an MRI remain the same...wouldn't worsening symptoms result in more lovely plaques?

        ...
        I don't know the answer to that. That's a good question, and one that I would ask my MS Specialist if it was happening to me. Although I had 7 MRI's in my first two years with MS, though (prior to dx), I've only had one in the past 8 years. It was in 2008, when I switched doctors, and she questioned my MS dx and wanted to confirm it (which she did).

        I hope that, if you ask your doctor about that, you can obtain a straight answer.

        ~ Faith
        ~ Faith
        MSWorld Volunteer -- Moderator since JUN2012
        (now a Mimibug)

        Symptoms began in JAN02
        - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
        - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
        .

        - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
        - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

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