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    Caringbridge.org

    I saw an article abut this site in the latest edition of Momentum magazine. I am giving some thought to starting a site there. I was wondering if anyone here has had experience with the site?

    I think it can be a source of good information for anyone who cares but does not know how or are to uncomfortable to ask how you are doing. Just looking for some opinions.
    Dx'd 4/1/11. First symptoms in 2001. Avonex 4/11, Copaxone 5/12, Tecfidera 4/13 Gilenya 4/14-10/14 Currently on no DMT's, Started Aubagio 9/21/15. Back on Avonex 10/15

    It's hard to beat a person that never gives up.
    Babe Ruth

    #2
    Sounds like a great idea! I am on CaringBridge for a friend who is going through her first acute case of NMO. She just got out of Mayo after being in the hospital 2plus months. Two folks post her daily progress/setbacks and we then sign uplifting messages on her virtual guest book. Some have donated $$ to the site to keep it going.

    Not sure how else this works. Good luck~
    Jan
    I believe in miracles~!
    2004 Benign MS 2008 NOT MS
    Finally DX: RR MS 02.24.10

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      #3
      All my experiences with caringbridge have been very positive. I have always been on the friend/family side of the equation not on the "patient" side. It was a great way to get information and to give support. As the situations that friends and family members all used caringbridge for were acute/emergency/terminal sort of cases I hadn't thought of it being used for chronic conditions. Worth looking into.
      M.
      A question that sometimes drives me hazy: am I or are the others crazy?
      Albert Einstein

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        #4
        All my experiences with caringbridge have been very positive also. I have friends that are on there because someone they love has cancer or whatnot...

        I think if your open to blogging daily or weekly then people will read and stuff...
        Fighting the MonStor, and the Beast of Depression.
        A fake smile can hide a Millon tearS

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