Two years ago I was told by an MS specialist that I have probable MS. I have a spinal lesion at C5/C6 but no lesions in my brain. I have two O-bands in my CSF. So, he put me on Avonex, which I have been taking for the past two years. Still, no lesions in the brain. I decided to go to another MS specialist for a second opinion. The second MS specialist said that I have a demyelinating disease. He mentioned Transverse Myelitis as a possibility which could eventually turn into MS. I was wondering if anyone reading this had been told they have Transverse Myelitis and if so, did it eventually turn into MS? Meanwhile, he recommended that I stop taking Avonex until my next MRI is taken in 6 months. If a new lesion is found in the brain then, we know it's MS.
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I was Dx TM in 2004 and then MS in 2006 after a second episode. They were not starting on MS Meds for TM then but I often wonder if they had would it had made a difference. Good luck! -
Hi Campingirl:
There have been previous threads here about transverse myelitis. If you read through them, you can get more information than just what might be posted under this thread. You can find them by using the search feature. Here are some threads to get you started:
http://www.msworld.org/forum/showthr...verse+myelitis
http://www.msworld.org/forum/showthr...verse+myelitis
http://www.msworld.org/forum/showthr...verse+myelitisComment
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Thank you Labms and Redwings for your replies. I read the threads about TM and found them very informative. I guess only time will tell what is going on with me. I've been tested for Lupus, Lyme disease and a whole bunch of other autoimmune diseases. All came back fine except a mildly elevated ANA. The neurologist said I could have another spinal tap to see if the bands increased or decreased. That would help determine if it is MS. However, I had a bad experience with the spinal so I would rather not do it again.Comment
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