My doctors and my neuro have been on the MS train since severe bilateral optic neuritis was found 2.5 months ago. I do have the numbness and tingling in hands and feet, more so on left side. I have numerous ms symptoms along with the extreme fatigue, and severe drop leg, my peroneal nerve does not work properly, almost completely non functional.
Have since had all mri's, but they found no brain or spinal lesions. But my RA factor came back high in blood and spinal fluid. Then neuro opthamologist has said I have 40% vision loss in both eyes, and there is damage from the ON. Well I am now being sent not only to a ms specialist I am being sent to a rhuematologist for the high RA/RF factor. There was RA found on my neck and spine.
Well now to top all this off, I have been diagnosed with Epstein Barr...numbers are 8.1. But not being told much about it except it is exaserbating all that is going on in my body. And causing me to flair horribly. So now docs are on the lupus train as well. They are saying I now have Fibro, along with the RA is a for sure diagnosis. But I either have MS or Lupus, one or the other. I am so confused and wished I could find out something. But am reading so much about EB being linked to the MS...anyone in my shoes, or been in my shoes with all of this??? Help please...
Have since had all mri's, but they found no brain or spinal lesions. But my RA factor came back high in blood and spinal fluid. Then neuro opthamologist has said I have 40% vision loss in both eyes, and there is damage from the ON. Well I am now being sent not only to a ms specialist I am being sent to a rhuematologist for the high RA/RF factor. There was RA found on my neck and spine.
Well now to top all this off, I have been diagnosed with Epstein Barr...numbers are 8.1. But not being told much about it except it is exaserbating all that is going on in my body. And causing me to flair horribly. So now docs are on the lupus train as well. They are saying I now have Fibro, along with the RA is a for sure diagnosis. But I either have MS or Lupus, one or the other. I am so confused and wished I could find out something. But am reading so much about EB being linked to the MS...anyone in my shoes, or been in my shoes with all of this??? Help please...
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