Jack Osborne

[Thinkimjob]

They actually said that, CougarMama? A disease of inconvenience?
Now that really does make me want to use several words that are very conveniently popping into my head.
None, alas, fit for a family web forum.

[mjan]

Actually, Tawanda, I have seen this on at least a half of dozen various shows for 2 days. Jack himself will be on THE TALK with his mother tomorrow..check your listings!!

Jan

[Tawanda]

Thanks Sharon!

Apparently Jack Osborne was too minor of a celebrity to generate much buzz. I guess he's no Annette Funicello or Richard Pryor, because it seemed like this story pretty much fizzled after about half a day! We should thank his Mom, Sharon, for her emotional outburst. Otherwise his M.S. diagnosis may have never hit the media in the first place!

As Rodney Dangerfield would say, this disease gets no respect!

[CougarMama]

I agree!

Lol, yeah the television isn't always our friend.

I find it disgraceful and irresponsible that anyone would have the nerve to call MS "very treatable". It is a chronic, progressive disease that has the potential to ruin lives.

I completely agree! I googled "ms treatable" and came upon such reputable sites as MTV and Celebrity cafe! In my pre-MS life I worked with neurologists. When I was diagnosed I asked a couple of them their take on MS (without telling the i was diagnosed, of course) and they called it a disease of "inconvenience". I wish I felt that way!

[Sir-Voor]

LOL Lisa,

Considering how they make a way big deal out of what they wear, their hair style, speeding or drunk driving tickets, I say their response has been normal for them.
(Not that their normal is normal. )

[Tawanda]

"Not cureable but highly treatable" (?)

Anyway now GMA just announced the good new is it is "very treatable" ok am I wrong? I was told my MS is not treatable just the symptoms and my DMD will cut down on my flares and not cure me. So how can they say it is very treatable. OK maybe I need to get away from the TV and go to work.

I know. I was stuck to the boob toob myself yesterday, too. When a celebrity announces they have M.S., I get obsessed about the coverage! Dr. Drew briefly covered it with a guest comedian, Adam someone and that was just so ridiculous. Entertainment Tonight actually did a better job. Yes, I did hear "not curable, but highly treatable" repeated a couple of times throughout the night's coverage. Kind of a goofy statement if you ask me, but at least our disease got some much needed exposure...at least for a day.

[kellygrn]

A neuro in yesterdays article said he felt sorry for those of us dx before DMD's. Oh well. I had a very bad day yesterday & reading that didn't help.

Now that made me mad. I have had MS for over 50 years. Wonder how many other docs feel the same way?

KK

[Jules A]

Ok maybe I was having a bad day yesterday. I understand it is a major blow to the entire family. Maybe I am upset at how my family is handling my dx.

Anyway now GMA just announced the good new is it is "very treatable" ok am I wrong? I was told my MS is not treatable just the symptoms and my DMD will cut down on my flares and not cure me. So how can they say it is very treatable. OK maybe I need to get away from the TV and go to work.

Lol, yeah the television isn't always our friend.

I find it disgraceful and irresponsible that anyone would have the nerve to call MS "very treatable". It is a chronic, progressive disease that has the potential to ruin lives.

[Sequoia]

Ok maybe I was having a bad day yesterday. I understand it is a major blow to the entire family. Maybe I am upset at how my family is handling my dx.

Anyway now GMA just announced the good new is it is "very treatable" ok am I wrong? I was told my MS is not treatable just the symptoms and my DMD will cut down on my flares and not cure me. So how can they say it is very treatable. OK maybe I need to get away from the TV and go to work.

MS is treatable in the sense that AIDS is treatable, or Diabetes, or some cancers. There isn't a cure, but there are DMDs and symptom medications to slow it down & keep it under control so you can live with it.

[lisa1014]

Ok maybe I was having a bad day yesterday. I understand it is a major blow to the entire family. Maybe I am upset at how my family is handling my dx.

Anyway now GMA just announced the good new is it is "very treatable" ok am I wrong? I was told my MS is not treatable just the symptoms and my DMD will cut down on my flares and not cure me. So how can they say it is very treatable. OK maybe I need to get away from the TV and go to work.

[Tawanda]

Ok so I was diagnosed last year and I am watching Sharon Osborn on the talk and thinking man he isn't dying. I know this disease is a bad thing but I feel like the way the tv and internet is talking about Jack it is like he has a few months to live. Am I the only one thinking they are making a way big deal out of something we live with everyday?

I'm sure Sharon and her entire family will eventually relax into Jack's diagnosis. It takes too much energy to sustain that kind of emotion for very long. I know my family has calmed down over the years and no one really brings up the whole M.S. thing unless I do.

Rest assured, though, the initial diagnosis was a total freak out. I got my diagnosis, took to my bed, and waited to die. Next thing you know, I couldn't stand lying in bed for a minute longer and remembered that line from the movie, Shawshank Redemption that you can either get busy living or get busy dying. Well, I got busy living and it's been about an 8 year roller coaster ride but no one can make me apologize for totally freaking out when this all first went down, beginning with that deafening first trip down the MRI tube.

At least Sharon is real about it all, which is pretty unusual for the Hollywood sect.

[Jules A]

Ok so I was diagnosed last year and I am watching Sharon Osborn on the talk and thinking man he isn't dying. I know this disease is a bad thing but I feel like the way the tv and internet is talking about Jack it is like he has a few months to live. Am I the only one thinking they are making a way big deal out of something we live with everyday?

We do live with it every day but imo it is a huge deal to be diagnosed with MS and personally I think here we tend to downplay it in the spirit of being "positive".

Perhaps it is because I have seen the worst of the worst in my line of work but this is a nasty disease and frankly there are times when I think a terminal diagnosis would be a blessing compared to what my future might be so I totally understand Sharon's devastation at this stage in the process.

[lisa1014]

Ok so I was diagnosed last year and I am watching Sharon Osborn on the talk and thinking man he isn't dying. I know this disease is a bad thing but I feel like the way the tv and internet is talking about Jack it is like he has a few months to live. Am I the only one thinking they are making a way big deal out of something we live with everyday?

[Tawanda]

Missed the Today show, but am just seeing it on Fox news. So terrible. All the money and fame does not matter when you have this horrible disease. I was edx late in life, even though I had it for much longer and now I am glad I did not know sooner. Yeah, I could have gone on DMD's and maybe not been as bad now, but as a young person, this just seems much worse.
I am anxious to hear if anyone says anything more. Maybe Ozzie can give lots of money and a cure can be found.

JudySz

Hey JudySz,
I, too, know I had M.S. symptoms for a good 10 years before getting checked out, and ya, there were DMDs I could have started earlier, but personally I am glad I didn't know. It's all in how you spin it. If I KNEW it was M.S., the minor symptoms I had back then might have seemed more like major symptoms, if only from a psychological perspective it could have had just as profound of an effect and I may have quit working sooner. It was only after the little taps in my body became loud clunks that I finally went to the doctor (a habit I've had all my life).

I am thinking that I had a twenty year head start on Jack with this disease, and I am doing so much better than my mom did with M.S. I can only hope that the new generations will do even better or be able to rid themselves of this stupid disease completely.

This also confuses me about Ozzie being "misdiagnosed" with M.S. Is Ozzie really O.K.? Pretty odd coincidence.

[Jules A]

What sad news for him and his family. Sharon is outspoken and a total Mama Bear so I hope she can generate some buzz about the need for more MS research.

Praying he has an easy time of it.