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If not ms than what is it

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    #1

    If not ms than what is it

    Hi. I have posted before that im currently working with a nuero. To figure out whats wrong with me. I experience bladder issues cant walk straight. Pain. And numbness and tingling that statts in my extremities and moves up.

    I feel a whole lot of sensory symptoms. And have Memory loss and slurring. I have been tested for everything i have a vitamin d deficiency and have been treating that for a year my levels were a 3 And i take 50000 units weekly.

    I had evp with normal results. And a mri of brain w and wo contrast and a cspine without contrast My dr ordered them because of my symptoms and the fact that i failed the balance test

    I got reports from mris and there both normal. Not seeing my dr for his opinion for another month and wish it would come up because there is some funky stuff on one of the pics. Im sorry to ramble. But. Ive been tested for everything.

    I feel crazy and like a hypochondriac but i can barely walk and when i drive sometimes my leg wont move. Its happened before. But when im in car im scared. Has this happened to anyone else when trying to get diagnosed. And if its not ms what is it. This was my last stop with drs and tests. Please im losing my mind And i find more info on this site than from any dr. Thank u
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    #2
    I'm in the same boat as you--numbness (mine is persistent and all over at this point), loss of balance, loss of coordination, loss of cognitive functioning, double vision, fatigue....

    Trying to figure out what kind of specialist to see if the current neurologist doesn't find anything.

    I'm assuming you've been tested for lupus and Lyme disease and myasthenia gravis. Trying to think what other tests I've had done. You might want to see a rheumatologist to rule out things like fibromyalgia and chronic fatigue syndrome/myalgic encephalomyelitis as well as rheumatoid arthritis.

    If anyone knows of other things we should be looking for, I'd love to know what they are!
    Accepting reality is not the same as wanting to have a problem. It means accepting something that will be happening whether I want it or not.

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      #3
      I wish you luck on your journey. I dont want anything qrong but my body is comstantly reminding me im not right Ive takin all the steps at this point. Sooo frustrating. The radiologist who dis my mris was curious y i didnt have c spine and thoracic mris with contrast since my dr wants to rule out ms. I dunno anymore

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        #4
        Google Central Nervous System Diseases. There are many & most don't have a lot of difference.

        Once you get an dx, you will still be treating symptoms.

        KK

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