I guess I come in second, at 56, but didn't start getting symptoms until I was around 53-54, which puts me in first, I think!
I saw a neuro for some very mild shakiness in my hands when 53, which I thought might be the beginnings of Parkinson's. Neuro did some tests which were negative and sent me on my way, appearing to think I was wasting his time.
It got a bit worse so I mentioned it to a social friend who is a neuro, and he told me to stop fish oil and stop Coke Zero, and was not otherwise concerned.
Started getting some prickly sensations in my chest last September and decided to go to the ER. That is where they found a big foggy patch of white brain matter where there should be gray matter. No leasons, just fogginess, and the spinal tap was normal.
I took the radiologist's report and MRI scan to my friend the neuro last November. At first he gave the standard exam, read the report, and didn't appear to be concerned in the least and almost dismissive. Then we looked at the scans, and his attitude immediately changed. We did a couple of tests and he decided it was mild MS and got me on Solumedrol and Betaserone when my symtoms quickly got worse (but still mild).
The only thing I can think of that might have hinted at MS before age 53 was I had the prickly feelings maybe 10 years ago for a while, and it was that same time period I developed tinnitus. Coincidence?
But, even at 57, my symtoms remain mild, though I hear people, especially males, who get this later in life often progress quickly. I have gone to a better diet and have a cabinet full of vitamins and other things said to be good for MS, and had CCSVI in March (have not noted any improvements, but neither have I progressed much).
I saw a neuro for some very mild shakiness in my hands when 53, which I thought might be the beginnings of Parkinson's. Neuro did some tests which were negative and sent me on my way, appearing to think I was wasting his time.
It got a bit worse so I mentioned it to a social friend who is a neuro, and he told me to stop fish oil and stop Coke Zero, and was not otherwise concerned.
Started getting some prickly sensations in my chest last September and decided to go to the ER. That is where they found a big foggy patch of white brain matter where there should be gray matter. No leasons, just fogginess, and the spinal tap was normal.
I took the radiologist's report and MRI scan to my friend the neuro last November. At first he gave the standard exam, read the report, and didn't appear to be concerned in the least and almost dismissive. Then we looked at the scans, and his attitude immediately changed. We did a couple of tests and he decided it was mild MS and got me on Solumedrol and Betaserone when my symtoms quickly got worse (but still mild).
The only thing I can think of that might have hinted at MS before age 53 was I had the prickly feelings maybe 10 years ago for a while, and it was that same time period I developed tinnitus. Coincidence?
But, even at 57, my symtoms remain mild, though I hear people, especially males, who get this later in life often progress quickly. I have gone to a better diet and have a cabinet full of vitamins and other things said to be good for MS, and had CCSVI in March (have not noted any improvements, but neither have I progressed much).
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