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    #1

    MS Specialist

    I have read post and posts about how IMPORTANT it is to see someone specializing in MS. Yesterday, I found out that is SO true. Since, November I have been seeing a neurologist rated by D magazine rated in the top 10 neurologist in Dallas. I had liked him, but had felt he was just basically telling me what to do. That, I should be a robot and didn't feel connected at all. Yesterday, I saw his nurse practioner, who specializes in MS. What a DIFFERENCE!! We talked about what has been going on with me. I told her about the major numbness that I have had and all my falling down. The first thing she asked "Have you had an UTI lately?" I said "Yes, I have back in April." She explained how when you have an uti how you can get pseduo symptoms.

    She spent time explaining the different meds. and my best options! The other told me, that I would be on Rebif. (no other options)

    I had thought I was going down fast and was so encouraged that things are not as bad as I was thinking!

    So if you are new or not so new... make sure you have a neurologist or nurse practioner, who specializes in MS! It DOES make a difference!

    Sara
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    #2
    Thanks for the great info.......but now I need to know how do you know if a practitioner specializes in MS or not? Is there a list?

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      #3
      You probably can contact the National MS Society for that. If you live around Dallas I saw Shirley O'Leary at Texas Neurology.

      Sara

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        #4
        They will probably admit it....lol....

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          #5
          Sorry to hear of your trouble..glad to know that you found someone to help understand what's goning on...that's real important. I'm currently investigating a series of UTIs. Been referred to a urogynologist in my area (Wash DC). Perhaps you should inquire about investigaing UTI stuff when you see your MS spec again
          [I]Tellnhelen
          Progressive Relapsing MS

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            #6
            I totally agree.
            I saw two neuros before I found "the one"
            My first two neuros were worthless. I was told I had migraines and I needed to get on heavy doses of anti-anxiety meds and see a psychiatrist. I was put on migraine medication, even though I insisted I never even get a headache ...I was told that I DO get headaches...and that my life was stressful because I have children....ummmm ok?
            The meds GAVE me migraines within 3 days, by the 5th day I called my neuro and told him about the massive headache I was having. Turns out I was allergic so he told me to stop taking it, yet didn't want me to come back into the office and didn't prescribe a different med. I was just blown off and forgotten about. I'm assuming because I was just crazy and just needed a psychiatrist not meds.
            My mother talked me into trying just one more neuro, just one more before giving up...I had pretty much already given up.
            So just to make my mother happy, and really to just make her be quiet, I made an appointment to see another neuro. What a great idea. The first thing he told me when I was at my first appointment was..."Forget what you have heard up until now, we are starting over" ..I loved him already. By my 5th or 6th appointment and tests all rerun....I was diagnosed.
            He then told me he was an MS specialist. I didn't even know when I made the appointment, he was just the last neuro in my town to try and my last hope.

            He really has me feeling better than I have in a couple of years and he really has put me at ease.
            He tells me every time I go to my appointments how much better I look since the first time I saw him. I tell him it is because I found him....
            A specialist is definitely the way to go. They listen, they don't think you are just crazy, unless you really just are crazy, and they know what they are talking about.
            DX 10/26/11

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              #7
              Moral of the story...

              ....always listen to your mother!

              Seriously though, I'm glad you found a doctor that you are happy with. That alone is a battle!

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                #8
                Originally posted by Sara Angela View Post
                You probably can contact the National MS Society for that. If you live around Dallas I saw Shirley O'Leary at Texas Neurology.

                Sara
                Thank you for recommending this specialist. I've been searching for a neuro who might actually listen to me and maybe know/understand something.
                Diagnosed December 20, 2011
                Avonex: February 10, 2012 - March 16, 2013
                Tysabri: June 28, 2013 - May 23, 2014
                Betaseron: August 15, 2014 - March 10, 2015
                Aubagio: June 18, 2015 - current

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                  #9
                  Good fore you Sara! I am one of those has been screaming about the MS specialist. It is really good to hear that you have found one of the pieces to the puzzle ! Good luck

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