50 lesions`. Surprised

[NickyOz]

I have had MS for 10 years or more. For 9 I have had very few symptoms and very few years. Last year I had a very stressful 6 months that left me unable to walk among other things. I have been like this for around 8 months. I have been on ty

Even though I have had 3 MRI I have never been told how many lesions I have and where. This time I insisted. He said there were to many to count. I said what do you mean. He said for example there are at least 50 in your corpus collasum. That is loads for someone your age ( i am 44).

[BigA]

Wow, that must have been a bit of a shock. Are all the MRI's recent? Do you think you always had many lesions or just finally feeling the effects of them?

They say lesion count is a poor indicator of disability. I hope you get some recovery.

[Camsue]

MRI lesions

Me too!! I've had MS for 30 years and had my 2nd MRI last year...they told me I had 40+ lesions..SHOCK was my response!

Now that I have calmed down and returned to my easy-going positive thinking I wonder..so what? what does that even mean? nothing different...8 months later I'm still the same as before I learned of my many lesions.

I'm going to continue to mow my lawn, go to the gym, and walk as long and far as I want (with a shopping cart )

[Thinkimjob]

How's the Tysabri going?
I've had MS for 13 years. MS specialist said much the same thing. I've never looked at all the MRIs.
Knowing doesn't make a difference.
Then again, maybe I would prioritize differently.

At the moment MS, and having (perhaps) to start Tysabri is Number 3 on a longish list of worries.

Truly I do try to stay perky, but sometimes, as someone else here once said, ignorance is bliss.

[maximumlite]

Since 97 I went from 3 to 5 to 8 and within 2 years I went from the 8 to 40 lesions split evenly now 20 on each side only this time it brought a friend who has a name of Dawsons Finger, even with this increase and whoever Dawson is my last neuro said it was'nt MS but Vasculitis whatever that is. My current neuro who was once a partner with the last neuro said that him and the neuro who saw me before him who is now a current partner told me that they probally cost me 10 good years of quality life because of misdiagnosis, he said it was his opinion that if they would have put me on a DMD years ago I probally would'nt be SP now.
I was surprised at his brutal honesty, as his current patner blamed my lesions on smoking and I had not smoked in over 10 years. I've always wonderd if he ever talked to her about her wrong DX as he is the medical director at where they work now and if he questions any of her DX's of either yes or no as to weather you have MS or not. At least he can see the same info she had available to her when she was seeing me

[NickyOz]

I guess I was just`surprised when ye man said that I had loads of lesions for my age and he only lookrd at one pat of my brain.