Vision greyed out

[Mynamegoeshere1]

My vision keeps going grey where that's all I see is a blob of grey. What is this? Is this MS related? I had this before I was diagnosed, but I'm just curious. My neurologist didn't even acknowledge it in the email I sent him but did tell me to see a neuro-opthomologist due to my driving issues. Any help is appreciated as my appt isn't until next Tuesday.

[CougarMama]

Sounds like MS to me

Hi mynamegoeshere1! What your are describing could be related to MS or it could be some other issue but either way it's need to be checked pronto. With my MS I have lots of times where my colors fade out (when I get hot, tired or just at the end of the day). This is not ON but uhtoff's phenemonen, which typically occurs after damage to the optic nerve. Either way I wouldn't wait as it may be something that can cause damage.

Best of luck to you!

[Mynamegoeshere1]

?

Is Tuesday too long to wait? It is the first appt available.

[jessiesmom]

Vision problems

First of all let me say that it is great that you were able to get an appt. with a neuro-opthamologist so quickly. I think that is precisely the right kind of specialist to be seeing as an MS patient with vision issues. I have had Optic Neuritis (ON) twice and each time the affected eye had greying vision like you described. I told my husband that it felt like someone pulled a curtain down over my eye that made it difficult to see through. I also had pain when I moved that eye. If it is ON doctors will have different opinions on how to treat it but solumedrol of some sort is often prescribed. When it comes to my vision any sudden change is cause for concern but waiting until Tues. does not seem excessive.

Please let us know what happens. Good luck.

[Redwings]

You didn't specify (only implied), but I'm assuming your Tuesday appointment is with the neuro-ophthalmologist. You said that your vision "keeps graying out" and that this has been since before you were diagnosed, which means it's been going on for awhile. Did you tell that to the neuro-ophth's office when you made your appointment? If you did, then they made the appointment based on what you told them. If you didn't tell them that, then it might be helpful to call the office and ask if you should be seen sooner. You can also ask if they've had a cancellation and can see you sooner.

Based only on your own description, it sounds like 1) something that's been going on for awhile (i.e., not new) and isn't urgent, and 2) it might be Uhthoff's phenomenon, which isn't a problem in itself but is a symptom of demyelination (which you already know about from your MS diagnosis) and isn't urgent. The sum of those two is that Uhthoff's in a known MS patient isn't urgent.

Otherwise, for anyone to know if Tuesday is too long to wait would require that we already know what condition you have or suspect that it might be urgent based on your description. And since we can't know what you have, you'll have to rely on the neuro-ophth's office to know when you should be seen. But if you told us the same thing you told the ophth's office, a longstanding, intermittent problem isn't urgent and, unless something changes, Tuesday should be fine.

[Mynamegoeshere1]

.

I had this once before I was diagnosed but it went away after steroids. I was unsure if it was MS related or if it was because I had been in the sun a lot. This time it has been happening for about a week.

[Redwings]

This time it has been happening for about a week.

Now it sounds like you've had the greying out in two distinct sequences. It might help to specify what you mean by "keeps going" grey. That sounds like it comes and goes intermittently. If you mean instead that your vision suddenly greyed out and has been consistently grey for the entire time, that's something other that Uhthoff's. The important thing is that you relayed to the neuro-ophthalmologist's office exactly what happened and what you're experiencing. The neuro-ophth's office triaged you based on what you're experiencing and decided when you should be seen. If there's a possibility that you might not have accurately relayed what's happening, it would be beneficial to call the neuro-ophth's office and let them decide if Tuesday is still OK for your appointment.

[Cat Mom]

Myname, if you had this before and it went away with steroids, I would guess (an uneducated but personal experience guess) that there is some inflammation going on since one of the things the steroids do is reduce inflammation.

What dose of steroids were you on? IV or oral?

Jen

[its2much]

I have this also

The other day I spent 30 minutes looking for my car in a parking garage that I thought I had left on the orange level. There was a sign with just a color sign indicating you're on level __________. (Just the colored sign). Well I eventually found out that I wasn't on the orange level, I actually parked on the red level! Colors are alot less vibrant now.

[Mynamegoeshere1]

Steroids

I was on the iv steroids. The oral steroids have a bad effect on me.