I have been having numbness and like circulation (that is the only way I can describe it) being cut off in my hands and feet. My primary care doctor sent me to a Neurologist to have a Nerve Conduction Study done. He thought I had carpal tunnel in both my hands and feet. I didn't think so. I had the Nerve Conduction Study done. He did the needles and also where they shock you (I guess muscle testing) in both arms. He only found an Ulnar Entrapment in my left arm and nothing else. I am having most of my problems in my right hand. Not as bad in my feet and left hand. I was supposed to go back for further testing at the time but could not afford it. I was told at Mayo Clinic that my problems in my feet and legs were Restless Leg Syndrome. They gave me an iron infusion and said that should help. Well it never did.
I also have pins and needles sensations that come and go and it varies from day to day and it also varies all over my body. It could be my head, my back, etc. I also get shock like sensations in various places from time to time. I will be laying in bed and sware that I have been bitten or stung only to find out there is nothing on me.
I also have problems with my hearing. I have to get someone to say something sometimes over and over again before I can make out what they are saying.
I also get muscle spasms in my calves, toes and thighs that are not very fun. I also drop things all the time with my right hand. It just happens suddenly without warning. I have broken so many glasses, plates, etc. and spilled so many things. I also drop it with my left hand but more so with my right hand. It is like my hand gets weak and then I drop it.
My husband has also mentioned that for the past few years or so that he has noticed me talking out of one side of my mouth. I did not know. The only thing is that a few times I have had these episodes that where when I bite down hard I have this shooting pain go all the way from my jaw up to my ear. Do not know what caused it.
I have been to a Cardiologist and all he did was an EKG and a treadmill stress test and said I had arrythmias due to Fibromyagia. I went to him because I have dizziness, chest pain and shortness of breath. I also have low blood pressure at times with high pulse rate. When my husband and I have intimate relations sometimes I have bad chest pain afterwards. It feels like my heart is fluttering and about to jump out of my chest and I cannot breath. It is the worst feeling in the world.
Mayo clinic did a Pulmonary Function Test and they said it showed I have restrictive breathing. I was told it was due to deconditioning due to no excercise because of my Fibromyalgia. Do not know how that can be since I have been getting short of breath since I was 19 (I am now 38) and it is getting worse. And when I was 19 I was eating great and excercising, etc. No deconditioning back then. I have chronic cough (Ialso get asked if I am a smoker but I have never smoked), shortness of breath, dizziness, etc.
I have been having vision problems which no one can explain (I went to the eye doctor and all my tests came back fine). Words jump at me at times when I try to type and read. It gets so bad that I have to stop reading and typing. It makes me dizzy just watching them. And then I start seeing like spots and get a real weird feeling like I am going to pass out. I also have real bad night blindness. Had it for years.
I have had bad headaches off and on for years. I recently started having real bad headaches with dizziness and vomiting. The other day I also had a nose bleed prior to my headache.
I also have pretty bad urinary hestitancy and retention. I also have urine leakage. I also have bad constipation.
I have also had a problem for years with heat. It has gotten alot worse lately. I have to keep it really cold in my house especially at night when I sleep or I constantly toss and turn. I cannot even take hot showers or I get dizzy and faint. I get really flushed when I am in the hot weather outside for too long.
I am also clumsy but I have been like that for years. So not sure if that is a symptom. It is really bad though. I have so many scratches, scrapes, cuts bruises and bumps from falling and bumping into things so much.
I also get periods where I have real bad itching on my butt and back but it is worse on my hands and feet.
I have really horrible memory problems and have for years. They have gotten really bad. I at one time thought I had Dementia or Alzheimers. My memory is so bad that I cannot remember one day from the next what I read or watch on TV. I do not have a social life at all because of this. It it causing me real bad depression.
My worse symptom of all is fatigue. I have a hard time getting up in the morning because I am so tired (of course I never sleep well either). Then I have no energy to clean and by the time afternoon gets here I am ready for bed because I am fatigued again. And when I do have the energy to do something and I do it I am EXTREMELY tired for several days afterward and can hardly do anything at all.
A long time ago I thought I might have MS due to my symptoms but I dismissed it. I went to my pain doctor and talked to the nurse and told her some of what was going on with me and she said it sounds alot like MS to her. She told me to make an appt with a Neurologist. I am set up right now to be seen by one of the Neurologists at the Shands of UOF in Jacksonville Florida. Not sure yet when my appt will be.
Mayo clinic did blood testing for Lupus, Lyme, Rheumatoid Arthritis, Sjogrens Syndrome and various other autoimmune disorders and they came back negative.
I have also been diagnosed with:
Osteoarthritis by 2 Rheumatologists
Osteopenia by my Primary Care Physician
Fibromyalgia by 5 Rheumatologists
Some sort of Inflammatory Arthritis (They do not know what) by 1 Rheumatologist
Interstitial Cystitis by 2 Urologists
Endometriosis and Adenomyosis by 1 Reproductive Endocrinologist
IBS by 1 Gastroenterologist
4 bad discs, spinal stenosis and degenerative arthritis by 1 Orthopaedic Surgeon and a Neurologist
and I take several different medicines for these conditions
And by the way my medicines are not causing my symptoms. All the symptoms that I have mentioned have been happening for years and are just getting progressively worse.
Thanks
I also have pins and needles sensations that come and go and it varies from day to day and it also varies all over my body. It could be my head, my back, etc. I also get shock like sensations in various places from time to time. I will be laying in bed and sware that I have been bitten or stung only to find out there is nothing on me.
I also have problems with my hearing. I have to get someone to say something sometimes over and over again before I can make out what they are saying.
I also get muscle spasms in my calves, toes and thighs that are not very fun. I also drop things all the time with my right hand. It just happens suddenly without warning. I have broken so many glasses, plates, etc. and spilled so many things. I also drop it with my left hand but more so with my right hand. It is like my hand gets weak and then I drop it.
My husband has also mentioned that for the past few years or so that he has noticed me talking out of one side of my mouth. I did not know. The only thing is that a few times I have had these episodes that where when I bite down hard I have this shooting pain go all the way from my jaw up to my ear. Do not know what caused it.
I have been to a Cardiologist and all he did was an EKG and a treadmill stress test and said I had arrythmias due to Fibromyagia. I went to him because I have dizziness, chest pain and shortness of breath. I also have low blood pressure at times with high pulse rate. When my husband and I have intimate relations sometimes I have bad chest pain afterwards. It feels like my heart is fluttering and about to jump out of my chest and I cannot breath. It is the worst feeling in the world.
Mayo clinic did a Pulmonary Function Test and they said it showed I have restrictive breathing. I was told it was due to deconditioning due to no excercise because of my Fibromyalgia. Do not know how that can be since I have been getting short of breath since I was 19 (I am now 38) and it is getting worse. And when I was 19 I was eating great and excercising, etc. No deconditioning back then. I have chronic cough (Ialso get asked if I am a smoker but I have never smoked), shortness of breath, dizziness, etc.
I have been having vision problems which no one can explain (I went to the eye doctor and all my tests came back fine). Words jump at me at times when I try to type and read. It gets so bad that I have to stop reading and typing. It makes me dizzy just watching them. And then I start seeing like spots and get a real weird feeling like I am going to pass out. I also have real bad night blindness. Had it for years.
I have had bad headaches off and on for years. I recently started having real bad headaches with dizziness and vomiting. The other day I also had a nose bleed prior to my headache.
I also have pretty bad urinary hestitancy and retention. I also have urine leakage. I also have bad constipation.
I have also had a problem for years with heat. It has gotten alot worse lately. I have to keep it really cold in my house especially at night when I sleep or I constantly toss and turn. I cannot even take hot showers or I get dizzy and faint. I get really flushed when I am in the hot weather outside for too long.
I am also clumsy but I have been like that for years. So not sure if that is a symptom. It is really bad though. I have so many scratches, scrapes, cuts bruises and bumps from falling and bumping into things so much.
I also get periods where I have real bad itching on my butt and back but it is worse on my hands and feet.
I have really horrible memory problems and have for years. They have gotten really bad. I at one time thought I had Dementia or Alzheimers. My memory is so bad that I cannot remember one day from the next what I read or watch on TV. I do not have a social life at all because of this. It it causing me real bad depression.
My worse symptom of all is fatigue. I have a hard time getting up in the morning because I am so tired (of course I never sleep well either). Then I have no energy to clean and by the time afternoon gets here I am ready for bed because I am fatigued again. And when I do have the energy to do something and I do it I am EXTREMELY tired for several days afterward and can hardly do anything at all.
A long time ago I thought I might have MS due to my symptoms but I dismissed it. I went to my pain doctor and talked to the nurse and told her some of what was going on with me and she said it sounds alot like MS to her. She told me to make an appt with a Neurologist. I am set up right now to be seen by one of the Neurologists at the Shands of UOF in Jacksonville Florida. Not sure yet when my appt will be.
Mayo clinic did blood testing for Lupus, Lyme, Rheumatoid Arthritis, Sjogrens Syndrome and various other autoimmune disorders and they came back negative.
I have also been diagnosed with:
Osteoarthritis by 2 Rheumatologists
Osteopenia by my Primary Care Physician
Fibromyalgia by 5 Rheumatologists
Some sort of Inflammatory Arthritis (They do not know what) by 1 Rheumatologist
Interstitial Cystitis by 2 Urologists
Endometriosis and Adenomyosis by 1 Reproductive Endocrinologist
IBS by 1 Gastroenterologist
4 bad discs, spinal stenosis and degenerative arthritis by 1 Orthopaedic Surgeon and a Neurologist
and I take several different medicines for these conditions
And by the way my medicines are not causing my symptoms. All the symptoms that I have mentioned have been happening for years and are just getting progressively worse.
Thanks
Comment