Hi everyone,
I am a lurker. A year ago, I woke up with a numb, pins and needle pain in my ankle. After a few days of tripping, being uncomfortable, I went into the Dr. I had strange moments of imbalance, tremors, items were slipping from my grip and breaking on the ground. I then had a discomfort in my right eye and visual disturbances. Back to the Dr, then was seen by a Neuro and Neuro opthamologist and went through Brain/Spinal MRI's and a VEP test.
4 Syrinx's were found on my MRI's, but no lesions. My VEP came back abnormal with latency in the anterior portion of the optic chiasm and history of demyalination of the optic neuritis.
The neuro said, lets give it some time and come back in 6 months.
It has been about 8 months. I had still experienced fatigue, cognitive changes, etc but made many lifestyle changes--mostly raw diet, increase in exercise. I love my job as a pediatric occupational therapist and my life. Everything was pretty manageable.
Two weeks ago, my right eye pain came back with a vengeance. I went to the Dr hoping for possibly a steroid or some sort of thing for relief, but was told it was probably migrainal and not ON. I filled the prescription for tramadol and fioricet and have used them in limited doses since I am not a fan of medication. I am going to the Opthamologist tomorrow--yay!
I bought an eye-patch last week to help me be able to try and engage in activities around the house and it helps--sort of.
Anyone have any tips, suggestions? Any tips on questions or ways to advocate for my care at the opthamologist?
I am a lurker. A year ago, I woke up with a numb, pins and needle pain in my ankle. After a few days of tripping, being uncomfortable, I went into the Dr. I had strange moments of imbalance, tremors, items were slipping from my grip and breaking on the ground. I then had a discomfort in my right eye and visual disturbances. Back to the Dr, then was seen by a Neuro and Neuro opthamologist and went through Brain/Spinal MRI's and a VEP test.
4 Syrinx's were found on my MRI's, but no lesions. My VEP came back abnormal with latency in the anterior portion of the optic chiasm and history of demyalination of the optic neuritis.
The neuro said, lets give it some time and come back in 6 months.
It has been about 8 months. I had still experienced fatigue, cognitive changes, etc but made many lifestyle changes--mostly raw diet, increase in exercise. I love my job as a pediatric occupational therapist and my life. Everything was pretty manageable.
Two weeks ago, my right eye pain came back with a vengeance. I went to the Dr hoping for possibly a steroid or some sort of thing for relief, but was told it was probably migrainal and not ON. I filled the prescription for tramadol and fioricet and have used them in limited doses since I am not a fan of medication. I am going to the Opthamologist tomorrow--yay!
I bought an eye-patch last week to help me be able to try and engage in activities around the house and it helps--sort of.
Anyone have any tips, suggestions? Any tips on questions or ways to advocate for my care at the opthamologist?
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