Basically a vent

[kellijo]

I am in so much pain and feel like I'm just being pushed aside. Some back ground here.

Feb 6th went for my neuro appt. Got telling him about recent pain that was getting worse. It's joint pain. Long story short he wanted me to have tons of blood work done and asked me to try not to take a script until after blood work. I said ok. I had just had my steroid infusion so waited until last friday to do blood work. Ok so now that's done can get something for the pain now that is totally unbearable right? Wrong!

Now I keep leaving messages for him and getting nowhere. Yesterday he did have me go for a mri and vep. But, no info on anything being called in for me as far as meds.

I am so frustrated! I left yet another message for him today. We'll see where that gets me. Another dr from his practice did talk to me yesterday but, she didn't feel comfortable calling anything in because I'm not her regular patient.

Thanks for listening. Just going a bit crazy here. I did check with the pain clinic here. But, need a referral. Which I figured. Wonder if I would have any more luck getting one of those.

[cosake]

Sorry that you are stuck like this. Being in pain is not easy and I think gives you the right to do some whining.

How about your PCP ? Can they get you something temporarily for the pain, or make the referral to pain clinic for you ?

If you still can't get in touch with neuro, I would stop in at neuro's office and explain that you are not leaving until you have something for your pain; or they make a referral to the clinic for you IMMEDIATELY.

Good luck and hope you get resolution quickly.

[kellijo]

Thanks for the reply. He finally called me back. Putting me on elavil. I've taken that before and gave me crazy wacked out dreams. But, whatever will try again.

My pcp that I used to have left practice and went off to have a baby. How dare her! Well, I asked if I really needed a primary because I couldn't stand the one they switched me too.

His answer was no I shouldn't he would be able to take care of me. Then if I needed to see someone because I was sick I just went to convenient care.

I contacted the office where my primary used to be and made an appt with someone else.

I am also calling my neuro's office tomorrow morning when they open up for a referral to the pain clinic.

[palmtree]

It sounds like you have a plan. I hope you can get a good PCP because that is so important. My neuro is lame when it comes to any drugs that help. Its my PCP that rescued me. She got me to a good pain doctor.

I was going through the same nightmare exactly a year ago. Now Im on a time release medication a Lyrica. It was a livesaver to not have constant pain. Elavil! No way. I hate it when then dump these things on us that have terrible side effects but dont help.

[kellijo]

Yeah elavil sucks. I took it last night just to give it another shot. I'm sitting here at my desk at work falling asleep. I knew I hated it.

I got an appt with the same primary my mom has. She loves him. And got the referral to the pain clinic. So everything is moving along now.

Now if I could just wake up already.

[Lexie]

This is one of the most aggravating things with MS for me. I've been to two neuros and neither seem to know how my body feels. It's just so frustrating. Then my PCP does not want to do anything without the neuro's input. Feels we are inbetween a rock and a stone most of the time. Good Luck!

[valeriem2220]

I have been in pain non stop for 6 or more years. I had a terrible experience with my then family Dr when I spoke with him about it. I never went back to him.
Because of that experience I never spoke to another Dr about my pain.
I went to my bi-monthly neuro appointment Monday and HE asked me about pain. I never mentioned to him any pain, I don't know how he knew.
I told him my story and why I had never mentioned it before. He wrote me a script for Baclofen. I have only taken 3 doses so far and I am hoping it works for me but it does make me very sleepy. I feel like I have a hangover at all times now.

[kingrex]

I had a terrible experience with my then family Dr when I spoke with him about it. I never went back to him.
Because of that experience I never spoke to another Dr about my pain.

But, why?


rex

[valeriem2220]

Well lets see how short I can make this story...lol

6 years ago when my leg pain started I had already been visiting my PCP every other month or so for about 2 years because of shoulder pain. He kept giving me cortizone shots in my joint that didn't last very long.
My legs had become severely painful and kept me awake and in tears a few nights before my husband insisted I go to my PCP for this new pain.
My PCP insisted the pain was from my back and sent me to a pain specialist who gave me a cortizone shot in my spine.

When this didn't work and I was back to my Dr, he immediately wanted to do surgery on my back. I told him I didn't want to rush into surgery, so he then told me I needed to take time off of work. I asked him if he were going to put me on medical leave. He said no he would not. I told him I could NOT just take time off of work like that...He said to me in a very sarcastic tone..."IF you are in as much pain as you CLAIM to be in, you will take time off of work"

I informed him I would be fired if I took time off of work without a Dr placing me on medical leave. This is just how it works where I am employed. We do not even have sick days.
He insisted I needed surgery and said if I wouldn't take time off of work to help myself he couldn't help me.
I then began to cry and told him I was too young to live in pain like this for the rest of my life. I had a lot of years left in me and didn't want to live another 50 years in constant pain.

I was frustrated. I hadn't been able to lift my arm above shoulder height for almost 2 years at the time without excruciating pain and now my legs hurt to the bone, enough to make me just sit and cry. I didn't mean to cry but I couldn't stop it.
My PCP got very angry with me when I began to cry and he was done with me. The visit was over, no compassion whatsoever.
I wasn't diagnosed with MS yet, but I knew something was wrong.
I was just so upset by this visit that I was afraid every Dr would treat me the same as he did if I mentioned the pain I was in.

A couple of years later a chiropractor told me my back was no where near bad enough to have surgery. He even said my back looked good for a person my age. I am so glad I did not do what my EX-PCP wanted.
Now I know the pain in my legs is caused by spasticity and I now have the MS diagnosis. Even more thankful I did not rush into surgery.