Numbness & Walking Problems

[ShannaB]

My relapse has been going on for over a month now. I have never had one last this long or been this bad. When this first began I had numbness that ran from my ribs on down. I have seen some improvement in my pelvic area but my legs and feet have not come back "online" yet. I have noticed that the middle three toes on my right foot almost feel like there is a rubber-band around them and they are more numb than the other two toes. Very weird feeling! The rest of my foot and the other one has the pins & needles feeling.

My girlfriend and I went to Menard's the other day to check out some tile and bathroom fixtures. I have been getting around okay albeit a lot slower than normal but I noticed the longer we were there the more discomfort I felt in my feet. I started having more problems walking.

Does this ever happen to anyone else? Is this normal?

I called my nero last week to let them know that nothing has really gotten any better and he just told me to give it time.

[KatieDidNOT]

Yes...this seems to be normal. I had a flare last more than three months. So, I think your neuro is spot-on.

Katie

[LisaDG]

I completely get what you are talking about and feeling. That is what happens to me. After some time, my left leg will simply "check out". It can be very frustrating and painful after a while.

[Thinkimjob]

Did you have some 'roids? They don't fix you, but they do put a brake on a flare.
I'd say a month or so was probably within the scale of "normal".
Or maybe this is your new "normal".
I've been told you get six months' worth of recovery, so hang in there.

[myms06]

Your Numbness and Walking Problems

Sorry to hear about your walking and numbness problems. I am not real sure as to what it may be but I am going through the exact same thing, and not sure as to my MS diagnosis. But I was told that Numbess, Neuropathy, and Walking can be all related and can come and go for days or months. I am going to UTSW in Dallas for more tests and it is worse for me than ever now. My left foot went totally numb on Sunday and it was like someone just shot me with Novacaine. Then I had to try and walk on it to get the feeling back Are you diagnosed yet? If so, What form of MS is it? My legs go to sleep and I lose my slippers and then have to find one or the other.. But I hope this help, because I know what it feels like to be in this situation. Like myself, go back to a good Specialist and get checked again. It has been over 1 1/2 yrs since my brain MRI and i had 3 lesions then. Good Luck to you. myms06

[ShannaB]

I did have a round of steroids at the end of January. All 5 days. I don't really feel that they did anything this time around.

I know all about the Novacaine feeling! I had my pelvic area go 97% numb. Very weird to use the restroom, let me tell you! I had to listen to make sure I was finished.

My sortof dx was when I was 19 (I am 35 now) they ruled out a Tumor and Lupus and the only thing left was MS. I got my official dx 6 years ago. I have relapse/remitting MS. In the last 6 years I have had 3 big enough relapses that required steroids.

Going through the diagnosis process is very scary! I have had 7 spinal taps. Those are the worst but they are the best way to diagnose MS. Just remember that getting your diagnose is not the end of your life. My dad gave me the best advise I still live by to this day. He said give yourself one day to scream, ask God why, feel horrible but the next day get up and fight.

Once you know what is going on with your body it is almost a relief to have that answer. You just have to listen to your body, know your limits. I have a wonderful partner that helps keep me in check. And finding this message board has really helped too. I hope you find as much comfort as I have had with this group of people.

Good luck & I hope you have answers soon.