New here.
My husband is 31 years old. we have a 2 year old son. they are both the world to me. on 11-11-11 my husband was diagnosed with RRMS with symptoms of tingling in his left hand and foot and lesions found on his MRI. His father has MS so an MRI was ordered almost immediately. his copaxone injections started soon after that.
last thursday i woke up to the sound of my husband dry heaving at 3am. he continued to be sick every half hour since that time and around 2pm when he was developing symptoms of vertigo and double vision. i brought him into the ER convinced it was from dehydration. we just thought he had contracted a stomach virus that has been going around. there was a headache that was tied in with the nausea and vomiting so with his MS diagnoses they did another MRI. there were two new lesions towards the back of his brain. it's January and he was diagnosed in November and there are already new lesions?!?!? the one good bit of news the lesions that gave him his original diagnosis decreased in size. (didn't know that could happen)
They admitted him into the hospital Friday night and started a three day steroid infusion. By the next day his double vision was slowly getting closer together but his balance was still horribly off. Sunday his vision seemed the same and his balance better. Monday he was released still with his double vision, off balance and oral steroid prescription. Today is Wednesday and his vision is still somewhat the same but once again his balance and walking is getting better and better everyday. This is such a hard hit.
We are still getting used to the diagnosis and now this happens. The neurologist said that it takes about 3 full months for the copaxone to take effect but could it possibly be working if the other lesions are smaller? Is this considered a relapse?!?!? Will he be going through these episodes this severely for the rest of his life? when he was diagnosed the doctor said that with treatment and exercise he could go 10 years from now without even a sign of MS and now this??? Two months after his diagnosis? That almost killed any positive energy that I had! And what if he finishes the oral steroids and he is still seeing double and leaning to the left. Will he be this way permanently or does this pass once the inflammation of the lesions goes away?
This is all so new to me...even though I have seen it take his fathers mobility over the 12 years we have been together. I know that my husband will not take this laying down. He is such a fighter but its so incredibly difficult to cope with right now. I'm angry that this had to happen to him because he is such a wonderful man. I'm scared at what this holds for our future. I'm depressed that he isn't 100% better after the steroid infusions. I'm exhausted because I am taking care of him, my two year old now (when we always split duties:daycare pickup, bath time, feeding, diaper changes) and Im working full time. I'm sorry if I'm blabbing. I just want be as strong as possible for him and educated with this disease, the best way I can get that is communicating with all of you. Thank you in advance for any help and support you can provide.
last thursday i woke up to the sound of my husband dry heaving at 3am. he continued to be sick every half hour since that time and around 2pm when he was developing symptoms of vertigo and double vision. i brought him into the ER convinced it was from dehydration. we just thought he had contracted a stomach virus that has been going around. there was a headache that was tied in with the nausea and vomiting so with his MS diagnoses they did another MRI. there were two new lesions towards the back of his brain. it's January and he was diagnosed in November and there are already new lesions?!?!? the one good bit of news the lesions that gave him his original diagnosis decreased in size. (didn't know that could happen)
They admitted him into the hospital Friday night and started a three day steroid infusion. By the next day his double vision was slowly getting closer together but his balance was still horribly off. Sunday his vision seemed the same and his balance better. Monday he was released still with his double vision, off balance and oral steroid prescription. Today is Wednesday and his vision is still somewhat the same but once again his balance and walking is getting better and better everyday. This is such a hard hit.
We are still getting used to the diagnosis and now this happens. The neurologist said that it takes about 3 full months for the copaxone to take effect but could it possibly be working if the other lesions are smaller? Is this considered a relapse?!?!? Will he be going through these episodes this severely for the rest of his life? when he was diagnosed the doctor said that with treatment and exercise he could go 10 years from now without even a sign of MS and now this??? Two months after his diagnosis? That almost killed any positive energy that I had! And what if he finishes the oral steroids and he is still seeing double and leaning to the left. Will he be this way permanently or does this pass once the inflammation of the lesions goes away?
This is all so new to me...even though I have seen it take his fathers mobility over the 12 years we have been together. I know that my husband will not take this laying down. He is such a fighter but its so incredibly difficult to cope with right now. I'm angry that this had to happen to him because he is such a wonderful man. I'm scared at what this holds for our future. I'm depressed that he isn't 100% better after the steroid infusions. I'm exhausted because I am taking care of him, my two year old now (when we always split duties:daycare pickup, bath time, feeding, diaper changes) and Im working full time. I'm sorry if I'm blabbing. I just want be as strong as possible for him and educated with this disease, the best way I can get that is communicating with all of you. Thank you in advance for any help and support you can provide.
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