On Tuesday, I went to see my Neurologist at UTSW in Dallas. I go to the memory clinic because they have diagnosed my cognitive and memory issues.
I had not been for nearly six months because I missed an appointment due to illness. My doc doubles as a professor, so if you miss you cannot easily reschedule. In that six months I became so ill, that I was forced to see another neuro who I hated, but he did MRI's and determined that my lesions I had previously are still hiding, but I now have degenrative disc disease of the cervical spine. - yay.
After I explained my issues with heat this summer, my two week flare where I was so ill that I wrote a letter to my hub with all of my life insurance info in it, and how I was instantly better once I got to 80 degree weather during my vacation, having to use a cane and the rascal thingy at Walmart etc.. and lastly my current battle with spasms and twitchy muscles.
So I presented him with my MRI's, he said It looks as if the other doc was looking for MS. I told him that I've been told I do not have it, and that the disc disease is being blamed for my symptoms. -- To be honest I have given up.
He began asking questions about my symptoms, checked my reflexes and muscle strength.
and is sending me to have a visual evoked potential - never had one and a lumbar puncture at the MS clinic.
I had initially tried to go to the MS clinic but they reviewed my records and put me in the memory clinic b/c cognitive issues were my only "true" diagnosis. Getting in to this MS clinic is TOUGH. You either have to be diagnosed or be on fire while holding a sign that says "may have MS".
So I am very grateful.. even if it's just for a LP. I am sure that my MRI's will be sent along as well, because he told me he would have them thoroughly reviewed.
I hope this is the end of this very long journey,and if nothing else gives me an answer.
I have put on a brave face during this difficult journey but to be honest, and I know you guys all understand...
The twitchy spasms are a real B.- and I hope something can be done to stop them. I can deal with the fatigue, the brain fog, walking funny, the stalled sentences, and having to "check" to see if I have to go to the bathroom, but the spasms and the TN are tough.
LBJ
I had not been for nearly six months because I missed an appointment due to illness. My doc doubles as a professor, so if you miss you cannot easily reschedule. In that six months I became so ill, that I was forced to see another neuro who I hated, but he did MRI's and determined that my lesions I had previously are still hiding, but I now have degenrative disc disease of the cervical spine. - yay.
After I explained my issues with heat this summer, my two week flare where I was so ill that I wrote a letter to my hub with all of my life insurance info in it, and how I was instantly better once I got to 80 degree weather during my vacation, having to use a cane and the rascal thingy at Walmart etc.. and lastly my current battle with spasms and twitchy muscles.
So I presented him with my MRI's, he said It looks as if the other doc was looking for MS. I told him that I've been told I do not have it, and that the disc disease is being blamed for my symptoms. -- To be honest I have given up.
He began asking questions about my symptoms, checked my reflexes and muscle strength.
and is sending me to have a visual evoked potential - never had one and a lumbar puncture at the MS clinic.
I had initially tried to go to the MS clinic but they reviewed my records and put me in the memory clinic b/c cognitive issues were my only "true" diagnosis. Getting in to this MS clinic is TOUGH. You either have to be diagnosed or be on fire while holding a sign that says "may have MS".
So I am very grateful.. even if it's just for a LP. I am sure that my MRI's will be sent along as well, because he told me he would have them thoroughly reviewed.
I hope this is the end of this very long journey,and if nothing else gives me an answer.
I have put on a brave face during this difficult journey but to be honest, and I know you guys all understand...
The twitchy spasms are a real B.
- and I hope something can be done to stop them. I can deal with the fatigue, the brain fog, walking funny, the stalled sentences, and having to "check" to see if I have to go to the bathroom, but the spasms and the TN are tough. LBJ
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