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    #1

    Pain, pain, pain

    So frustrated. I have tod pcp and MS doc about my pain and no one wants to do anything about it. First they said ti was satica, not that.....then neuro increased neurontin. Does not seem to be helping. Next time I go in, I will make myself cry so they know how bad it is...Woke me up at 3 this morning.......the pain was as bad as when I had gall stones and they kept me at the hospital and removed gall bladder the next day.

    Vicodin helps but neuro says MS pain is not helped by it, so I cannot get a prescription. Have been on for tramadol for about 8 months and it really is not helpng.

    Just had to vent.

    JudySz
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    #2
    I'm so sorry you're in so much pain!

    What your neurologist said about Vicodin (and other opioids) not helping MS pain is incorrect. If the pain is neurological in nature, opioids won't help. But if it's muscular/skeletal pain caused by spasticity, opioids should be effective.

    The fact that you say Vicodin helps with your pain means it's probably caused by spasticity.

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      #3
      I am sorry to hear you have that much pain and your docs will not help. I sufer from the samething and I take, Neurontin, Baclofen and Lortab. Now, we tried everything we could but had to revert to the narcotic to get me any relief.

      Good Luck convincing your docs. I think I would have to tell one of them that I was not leaving their office until they gave me something to help.
      Dx'd 4/1/11. First symptoms in 2001. Avonex 4/11, Copaxone 5/12, Tecfidera 4/13 Gilenya 4/14-10/14 Currently on no DMT's, Started Aubagio 9/21/15. Back on Avonex 10/15

      It's hard to beat a person that never gives up.
      Babe Ruth

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        #4
        My pain got so bad at one point, I was screaming and crying and I called the neuro doc and he said to take ibuprofen or aleve.... I was like 'SERIOUSLY?!?!?' I changed neuro's to a MS specialist. Sorry your going thru all this pain. I hope you get relief and fast.

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          #5
          First of all from one who has had chronic pain to another OUCH.. sorry for what you are going through.

          Did they do an MRI of lower back? You'd be surprised at how much its missed and blamed on MS.

          Secondly do you see a good chiroprator? I use a chiro who uses a technique called B.E.S.T which is a finger while you hold your breath as he goes along the nerve pathways unblocking pinched nerves so the spine/muscles can move back into place.

          Chiros know how to work on pain period..whether its from muscles or discs...pain is pain. Also they have more training MORE than your neuro.

          For me its hard to know which is which, the MS or lower back/sciatica and what doc I should see. I have a great orthopedic doc who helps determine that for me.

          But its wise NOT to start to use Opiates at all for chronic pain. I was given RX Diclofenac a strong NSAID. IT really helps. It was amazing. Also have had epidurals which really helped. And.. dont forget the alternatives or combos: PT, Accupuncture, ice, stretching etc.

          Try really hard to get 2nd opinions and utilize a combo of MEDS and alternative help. Trust me, you do not want to "accidently" end up dependent on opiates its horrible. You'll end up feeling worse than what you were taking them for.

          Good luck and let us know how these evals go. Ok hon?

          Gentle Hugs, Jan
          I believe in miracles~!
          2004 Benign MS 2008 NOT MS
          Finally DX: RR MS 02.24.10

          Comment

            #6
            It may sound crazy, but Yoga may help you. Most of the middle-aged people I've met in Yoga are there because of pain and injury and it helps.

            Comment

              #7
              No knock against chiropracters, but if you prefer an MD the equivalent is a physiatrist... (http://www.aapmr.org/patients/aboutp...ysiatrist.aspx)
              1st sx 11/26/09; Copaxone from 12/1/11 to 7/13/18
              NOT ALL SX ARE MS!

              Comment

                #8
                I'm sorry!

                I am so sorry JusySz!!! I have taken clonazopam and opiates for several years, and about five months ago, I moved and when changing docs I was taken off the opiates, and clonazopam was cut in half w my new gp. At least until I get in to see my new nuero in my new town.

                I wasn't sure what to do or think, but I thought I would give it a try with out, just to make sure I wasn't dependent or anything.

                I did go thru withdrawls for about a week, it was very unpleasant, but then I was back to the regular unrelenting constant aches and pains I call my legs!!! Without them I am so much less productive, hurt ALL the time, and back to where my sleep is all over the place... life just stinks extra bad!!

                My #1 sx is fatigue and #2 is pain, and the opiates help tremedously with both!!!

                If my new nuero, who I will finally get in to see in a couple of weeks, doesn't put me back on them, I think I am going to find a doctor who will!!! I don't know if that is bad or not, but suffering extra like this bc some do not believe in opiates does not seem right to me...

                Best of luck to you!
                -Creede

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                  #9
                  Sorry to hear your docs aren't wanting to help you get relief. I understand completely!! Up untill a few months ago I was in the same boat. My PCP was giving muscle relaxers and demeral, but the demerol he only gave me a small amount and wanted it to last me like 3 months. My neuro doesn't right any pain meds, but was giving me a benzo to help me sleep.

                  I don't have a MS specialist because none in my area will take my state insurance!! The one place that will, my docs have been trying to get me in for almost 2 years and they keep losing the paperwork.i So.....it doesn't take a rocket sciencist to figure out they don't want me as a patient because of my insurance!!!

                  But on my own I found a pain clinic that I have been going to for about 2 months and it has really helped with my pain, they not only offer pain management but PT, trigger piont injections, botox and all sorts of stuff. Since I'm on a Shedule 2 narcotic I have to call them back on the PT to get them to have home health to come do my PT because I'm not legally supposed to drive while taking the meds.

                  I'm not sure were you're from or what your insurance will or willnot pay for but pain clinic maybe something to look into.....just make sure they are a legit pain clinic and NOT a PILL MILL!!! Do your reasearch on them before hand!!

                  Hope you find some relief!!!

                  ~Diagnosed July 2010~ ~Rebif July 2010-June 2011~Copaxone Aug.-Oct 2011~ No more shots for me!!~ I choose quality over quanity!!!

                  Comment

                    #10
                    Thanks all. I am goingto look into yoga at our rec center..

                    Then when I go back to neuro, which should be soon. (trying to start gylenia) so when all my tests are done, I need to make appt to see neuro......I will complain alot and tell them I want something......I do not think I will get addicted....Ido not take the old ones i have from otherstuff and they gave me a sleepig pill a long time ago, which I hardly ever use. I hate to tkae pills, so if I get anything strong I will be really careful.

                    Waiting for marijuana to be legalized in OH, or thinking of establishing a residence with mydd in DC where it is legal.

                    Judy Sz

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