Hi all,
I was just 'formerly' diagnosed with MS within the last week. It's been a 6 month adventure in tests, doctors and maybes. I also had positive lyme antibodies and the doctors were hopeful lyme was the problem, but no such luck.
I have not started treatment yet and after meeting with my neurologist yesterday (Jackel), think I need to find another neurologist in the area. He's a great doctor, but not terribly open minded and I'm not a patient who accepts an answer of 'that's what we do'... We discussed meds and he refused to consider Gilenya as an option and yep, when I asked why we had to start with an interfon med, he actually answered 'because that's what we do'... Like a kid, I kept asking why??
Met with my primary also yesterday who I absolutely love and he's actually doing some homework now about Gilenya.
Anyway, with that said, one of my first questions is for anyone from Sellersville / Bucks County and who they see. I've searched and come up with a couple names and saw Bayard as a doctor, but did not see any feedback on how things went with him. My current neurologist is one of the most 'professionally' respected in the area, but just don't think we mix well. I think I ask too many questions and having a medical research background in the biotech world, think I do much research for his preferance... my mom also said I asked too many questions
Can't say I'm happy to be here, but I'm happy this forum is here and from what I read, it's a great support community. I am very lucky to have a great husband (poor sucker tho, we just were married in September, but he's been along for the entire ride)...
I look forward to getting to know everyone and hopefully making some new friends! Warning in advance, I'm a bit of a smart aleck, been keeping the sense of humor, always believed half the battle in life is keeping positive and laughing...
Jen
I was just 'formerly' diagnosed with MS within the last week. It's been a 6 month adventure in tests, doctors and maybes. I also had positive lyme antibodies and the doctors were hopeful lyme was the problem, but no such luck.
I have not started treatment yet and after meeting with my neurologist yesterday (Jackel), think I need to find another neurologist in the area. He's a great doctor, but not terribly open minded and I'm not a patient who accepts an answer of 'that's what we do'... We discussed meds and he refused to consider Gilenya as an option and yep, when I asked why we had to start with an interfon med, he actually answered 'because that's what we do'... Like a kid, I kept asking why??
Met with my primary also yesterday who I absolutely love and he's actually doing some homework now about Gilenya. Anyway, with that said, one of my first questions is for anyone from Sellersville / Bucks County and who they see. I've searched and come up with a couple names and saw Bayard as a doctor, but did not see any feedback on how things went with him. My current neurologist is one of the most 'professionally' respected in the area, but just don't think we mix well. I think I ask too many questions and having a medical research background in the biotech world, think I do much research for his preferance... my mom also said I asked too many questions
Can't say I'm happy to be here, but I'm happy this forum is here and from what I read, it's a great support community. I am very lucky to have a great husband (poor sucker tho, we just were married in September, but he's been along for the entire ride)...
I look forward to getting to know everyone and hopefully making some new friends! Warning in advance, I'm a bit of a smart aleck, been keeping the sense of humor, always believed half the battle in life is keeping positive and laughing...
Jen
good luck.
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