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Hello everyone. Long time no see *sigh*

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    Hello everyone. Long time no see *sigh*

    Hi there. I have been away for sometime now. I am not dx with MS. I am dx with TN I am very sad. I am taking Phenytoin. It is taking the edge off but still get zaps here & there. So painful. All in the jaw/teeth area. Anyways....I am here just to look for support. I find MSworld has the best support than any other support board.
    I get my MRI on Friday to rule out things. They are focusing on my TMJ also. I have bad TMJ on the same side this awful pain is happening. I have yearly MRI's because I have an acoustic neuroma that I had Cyberknife done almost 4 years ago. They dont believe it is related to my TN.

    I just need a shoulder.

    #2
    Shoulders galore. We are a supportive lot, Lord help us. Good luck/ all the best.

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      #3
      My heart goes out to you.

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        #4
        Thank you for the shoulders
        Doctors don't thinks its MS, but who knows. My MRI is tomorrow. Will keep you all posted.

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          #5
          Hello all. Had my MRI which was normal. Glad to hear that. Dr asked MRI tech to check TMJ joints but that didn't happen. I was in horrible pain last night & this morning. Dr upped my Phenytoin to 200mg 3 times daily. So far so good. Keeping my fingers crossed.

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