I'd been following, through Facebook, the worldwide conference in Europe, covered by folks who are connected with NMSS and MSWorld. It's all been very interesting, but very abstract.
Then I heard one doctor say that it is time for doctors to consider the side effects of the new medications and plan on spending more time monitoring their patients, and following up with their patients, after tests, etc.
I was so happy to hear a doctor advocate more patient care and concern. I have long felt that the DMD treatments we inject are a DIY (do it yourself) project ... and that some neurologists withdraw from their patients as 'people' once the diagnosis is given and the treatment begins ...
"Call the pharmaceutical nurses - they are the experts" is something I heard often from my former neuro. My current neuro has her own nurses, and they and she do answer my questions and address my concerns directly.
So here's to the prediction of more neuro/patient monitoring and contact. Cheers!
Then I heard one doctor say that it is time for doctors to consider the side effects of the new medications and plan on spending more time monitoring their patients, and following up with their patients, after tests, etc.
I was so happy to hear a doctor advocate more patient care and concern. I have long felt that the DMD treatments we inject are a DIY (do it yourself) project ... and that some neurologists withdraw from their patients as 'people' once the diagnosis is given and the treatment begins ...
"Call the pharmaceutical nurses - they are the experts" is something I heard often from my former neuro. My current neuro has her own nurses, and they and she do answer my questions and address my concerns directly.
So here's to the prediction of more neuro/patient monitoring and contact. Cheers!
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