OK, so I've had all kinds of posts on here the past month or so trying to figure out my new symptoms. Back story in my siggy and more recently, i had 3 new symptoms crop up in Aug/Sept, called the MS center, they had me come in for an appt, the NP was very concerned that i was getting c-spine lesions and ordered a brain and C-spine MRI. After seeing her 5 weeks ago, I had 4 new symptoms crop up.
Had my follow-up appt yesterday and she went over my MRI ... no new lesions since last Nov! My MS specialist is on family emergency medical leave for a month so he wasn't there yesterday after all, and the NP will double-check this with the other MS specialist, but it really looks good.
Based on my symptoms and the fact that a lot of them started to improve after DH randomly said a few weeks ago, "Maybe you have an electrolyte imbalance that's contributing to some of your muscle jerks and spasms and stuff. You should try drinking G2" ... and the fact that I had some symptoms pop up last month that seemed like hypoglycemia and BP dropping ... the NP really thinks I have an electrolyte imbalance and some related hypoglycemia and low BP issues, maybe a B12 deficiency, and should follow up with my PCP for blood work and further testing. (I see him Friday; new PCP so hopefully he's good!)
I'm really amazed and thankful; here we were talking that I might need to move to Tysabri or Gilenya ... and all I really needed was some G2 and maybe a higher salt diet and more frequent snacks?? Incredible. We'll see what the PCP says for sure (I do have a STRONG family history of diabetes so we'll really need to figure out what's going on with the blood sugar issues) but I'm overjoyed that the MS is still stable for now after all. Thanks so much to all of you for your helpful responses to all my recent posts and questions. You guys are great!
Had my follow-up appt yesterday and she went over my MRI ... no new lesions since last Nov! My MS specialist is on family emergency medical leave for a month so he wasn't there yesterday after all, and the NP will double-check this with the other MS specialist, but it really looks good.
Based on my symptoms and the fact that a lot of them started to improve after DH randomly said a few weeks ago, "Maybe you have an electrolyte imbalance that's contributing to some of your muscle jerks and spasms and stuff. You should try drinking G2" ... and the fact that I had some symptoms pop up last month that seemed like hypoglycemia and BP dropping ... the NP really thinks I have an electrolyte imbalance and some related hypoglycemia and low BP issues, maybe a B12 deficiency, and should follow up with my PCP for blood work and further testing. (I see him Friday; new PCP so hopefully he's good!)
I'm really amazed and thankful; here we were talking that I might need to move to Tysabri or Gilenya ... and all I really needed was some G2 and maybe a higher salt diet and more frequent snacks?? Incredible. We'll see what the PCP says for sure (I do have a STRONG family history of diabetes so we'll really need to figure out what's going on with the blood sugar issues) but I'm overjoyed that the MS is still stable for now after all. Thanks so much to all of you for your helpful responses to all my recent posts and questions. You guys are great!
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