I am not DX. so since my neuro is booked until october and he couldnt get me in to see him anytime soon i was told to go to the ER if i needed to. The VA nurse was really nice and did a complete work up. My neuro did not come down to see me he sent his student instead.
His student was nice and i explained i was there for numbness/tingling mostly in the left side of my body, a falling feeling when im laying down, muscle pain as if i have the flu, and optic neuritis attack. He says my neuro still thinks its just migraines. Told him that my Neuro had said he would send me to the MS clinics and then changed his mind, but that i still wanted to go to get a second opinion.
I was already scheduled to do an EEG so the student sent me up to get that done and said he would meet me there with a plan when he spoke to my neuro. When he showed up he was mean and told me that i was reading too much into stuff i dont have MS and that they believe its just a blood clot in my eye. I ask him how does that explain the numbness and tingling and that i have optic neuritis in both eyes. he answered he didnt know.
He then told me that i dont have Optic neuritis, that the opthomologist/neuro has in his reports that i do not have this. I have been told for 4 yrs now that i do. So when i left i read the reports i have from the VA and it says right on there DR Johnson DX bi lateral Optic neuritis (left eye potic atrophy with poor acuity).
Was also told i had no lesions so therefore again cannot be MS. Reports say i do have lesions just not enought to DX. At this point I am done. I have been through 5 neuros and just give up. Would rather deal with the issues and pain then doctors who are unwilling to listen and speak the truth..
Sorry for the rant it was just a really aweful day
His student was nice and i explained i was there for numbness/tingling mostly in the left side of my body, a falling feeling when im laying down, muscle pain as if i have the flu, and optic neuritis attack. He says my neuro still thinks its just migraines. Told him that my Neuro had said he would send me to the MS clinics and then changed his mind, but that i still wanted to go to get a second opinion.
I was already scheduled to do an EEG so the student sent me up to get that done and said he would meet me there with a plan when he spoke to my neuro. When he showed up he was mean and told me that i was reading too much into stuff i dont have MS and that they believe its just a blood clot in my eye. I ask him how does that explain the numbness and tingling and that i have optic neuritis in both eyes. he answered he didnt know.
He then told me that i dont have Optic neuritis, that the opthomologist/neuro has in his reports that i do not have this. I have been told for 4 yrs now that i do. So when i left i read the reports i have from the VA and it says right on there DR Johnson DX bi lateral Optic neuritis (left eye potic atrophy with poor acuity).
Was also told i had no lesions so therefore again cannot be MS. Reports say i do have lesions just not enought to DX. At this point I am done. I have been through 5 neuros and just give up. Would rather deal with the issues and pain then doctors who are unwilling to listen and speak the truth..
Sorry for the rant it was just a really aweful day
I have had weird symptoms that come and go for more than ten years. 
I so angry for her. Needless to say she was finally dx'd with something wrong with her spine and she had to go to rehab. Her new Dr helped her is sueing the and she now the Dr who said it was all in her head and the hospital for not helping her when she had fallen.
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