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getting ready to set up an appointment for possible treatment options..
any words of advice..
Hi there:
Read, read, read. Ask, ask, ask. Learn as much as you can about your treatment options and ask as many questions for any doubts you might have. Be proactive about your treatment decision and take into consideration your lifestyle and whether or not you can withstand staying home when needed to because of side effects and the like.
It is not an easy decision, but you will feel more at peace with it if you take an active role.
Good luck
First episode with third pregnancy
On my fourth med: Tysabri since Jan 2013
Proud mommy of three children
Can't give advice without knowing where you're coming from.
Judging from your icon my advice would be to find something large and dumb and pound it into oblivion for some stress relief.
All I know is that when I was diagnosed I kept telling myself things could have been worse. That was how I coped and still do today. No matter how rough you've got it, there's always someone worse off, and you can thank you lucky stars that's not you.
As for constructive things, the advice above mine is spot on. Read, read, read. You're the one who chooses the type of treatment you receive, and you have to be informed to be your own best advocate. You cannot trust the professionals you meet with to be current on everything (and in some cases, anything), and if they are knowledgeable and trustworthy, you won't know it unless you educate yourself.
Come hear for a sounding board because ther eis always someone who can relate, and make sure you schedule some "me" time to help you have something to look forward to when things are bringing you down. Good luck!
Remember that you can change doctors as well as meds. Check out docs on internet/hospital sites. If you don't like the first doc you go to, go to another one. I'm not saying be a doctor shopper, but you have to be comfortable with your neuro. I'm sure everyone here would agree.
Last 2 posts are absolutely right research!
Also, joining chats here is a great way to learn and relax/vent and just feel better sometimes!
Best of luck! My motto is "Be a positive thinker, not a negative stinker!" kinda goofy, but keeps me going!
I have been reading A LOT over the last couple of months. I have 2 aunts with MS and they are both on Rebif. I feel very comfortable with my Neuro. he is very nice and understanding, explains things very thoroughly. The only thing is, he is like 70! I dont even want to think about finding another one when he retires. he is an MS specialist and has been for almost 50 years..
I appreciate everyone's advice!! and i am thinking of all of you as well!! best of luck to all us
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