SCREAMING ON THE INSIDE....

[cluvit25]

Hard to go to emergency room last week because of limb weakness. My legs are progressively getting weaker and my arms feel like I'm carrying around 1 ton on each. Anyway, the doctor did a CT scan but nothing else. He was nice, but said MS is hard to dx and if it were a disc issue it wouldn't really show up on the CT. Gave me a prednisone, which drives me up the wall, and pain medication. He sent me to another doctor for a followup and he says probable bell's palsy and the infection has spread throughout my body. He did prescribe neurotin and an anti-viral medication. However, he could not really tell me about the weaknesses I'm having.

I am trying to stay calm for everyone else, but inside I'm screaming and crying. I just want an answer and I want to walk normal. My legs were fine until about three weeks ago, and my son gets married next weekend. He's not aware of the new issues and I don't have the heart to tell him how weak I truly am. HELP!!!!

[webbles 989898]

Part of the problem could be stress about the wedding. Hang in there and do what you can but don;t beat yourself up if you are not 100%

[kerrymcgowan]

Ive had weakness since i got diagnosed and its so horrible as no one can see how we are really feeling and i als but a brave face on on but inside im so scared and its runing my life also my left eye has gone blurred and o have been put on steds to stop me losing my eyesight altogther! MS sucks and i hope we can find some kind of peace in it but i dont know where to start??! im sorry im not being very helpful but your not alone even know i ynderstand as i do feel so alone everyday its like where trapped with no escape as you can tell im not coping to well myself right now. thinking of you and so pray for cure to let us all be free! x

[GEM]

Do you have a regular doctor? Keep a journal of your symptoms, when they occur, any treatment you've received, etc. All of this would be very helpful to a doctor's diagnostic process. But you need a regular doctor, one who knows you and who can make referals to specialists.

[kerrymcgowan]

I see my doctor and a ms nurse, ive been put on copoxone injections which i no longer take and currently on steds for the relapse to help the optric neurtis. I have a 4 year old daughter and a single parent. I need to get back on track but this relapse has knocked me so far back im struggling. I feel so alone.

I hope all well for your wedding and the future Im sure if you tell your husband to be your concerns he should be some help and encouragment and all the best for your magically day x