I have been trying to find out for almost 4 yrs now whats going on with me. MS or not. It all started in 2006 when i got out of bed to answer my door and i fell straight to the floor. this happened 5 times in a row and i eventually just crawled to the door. It was as if I didn't have legs, no feeling in them at all. I didnt think much of it since it went away. About 10-15 mins later, I was fine.
In April of 2008, I started having numbness in my left arm from my armpit to the first 3 fingers, that lasted for a couple months. In July 2008 i started noticing that i had a big black blind spot in my left eye that did not go away. I thought at the time it was just because i was online too much. A week later i finally went to see an eye doctor and he rushed me to see an eye specialist. They told me i had a serious disease and needed an MRI right away. The MRI came back clean, but they sent me to a neurologist.
The neurologist did a Visual Evoked potential test. He came back in and told me he was positive i had MS and wanted a spinal tap. The spinal came back negative and he ordered another 6 weeks later. Again it was negative. I had to stop seeing this doctor due to my husband losing his job and insurance. I now have to go to the VA to a neuro. I have been through many MRI's, they told me that i had a lesion on my brain and a few on my spine, but newer MRI's showed no lesions. They were just gone. They also had thought they spotted an anurism in one of the MRI's, but 3 days later with a repeat MRI that was gone as well.
I have been diagnosed with Optic Neuritis in both eyes, the left being the worse of the two. My vision in that eye is 20/800 without glasses. I now have numbness on the entire left side of my body from my face to my feet. I get shooting nerve pains, and severe eye pressure when whatever this is all flares up. Then it all can go dormant for a month or few. The neurologist has changed his mind over and over about if it could still be MS or not. He is a MS specialist.
I was also sent to see a Neuro that specializes in migraines. He had no idea what to do with me, said he didnt have a clue what was happening. I am going for an EEG next week to rule out seizures since my daughter was just diagnosed with this last yr. I have been tested for Devics disease, Lyme disease, Lupus. Everything comes back clean. I can walk fine most of the time, but do have moments of weakness in my left leg. I have moments where i can't say what i'm thinking as well, and moments where my kids ask me questions and i just sit there unable to even think or answer them.
I'm so lost and having a horrible time getting my doctor to listen to me and not blow off my symptoms. Anyone have any ideas?
**Post broken into paragraphs by Moderator for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print.**
In April of 2008, I started having numbness in my left arm from my armpit to the first 3 fingers, that lasted for a couple months. In July 2008 i started noticing that i had a big black blind spot in my left eye that did not go away. I thought at the time it was just because i was online too much. A week later i finally went to see an eye doctor and he rushed me to see an eye specialist. They told me i had a serious disease and needed an MRI right away. The MRI came back clean, but they sent me to a neurologist.
The neurologist did a Visual Evoked potential test. He came back in and told me he was positive i had MS and wanted a spinal tap. The spinal came back negative and he ordered another 6 weeks later. Again it was negative. I had to stop seeing this doctor due to my husband losing his job and insurance. I now have to go to the VA to a neuro. I have been through many MRI's, they told me that i had a lesion on my brain and a few on my spine, but newer MRI's showed no lesions. They were just gone. They also had thought they spotted an anurism in one of the MRI's, but 3 days later with a repeat MRI that was gone as well.
I have been diagnosed with Optic Neuritis in both eyes, the left being the worse of the two. My vision in that eye is 20/800 without glasses. I now have numbness on the entire left side of my body from my face to my feet. I get shooting nerve pains, and severe eye pressure when whatever this is all flares up. Then it all can go dormant for a month or few. The neurologist has changed his mind over and over about if it could still be MS or not. He is a MS specialist.
I was also sent to see a Neuro that specializes in migraines. He had no idea what to do with me, said he didnt have a clue what was happening. I am going for an EEG next week to rule out seizures since my daughter was just diagnosed with this last yr. I have been tested for Devics disease, Lyme disease, Lupus. Everything comes back clean. I can walk fine most of the time, but do have moments of weakness in my left leg. I have moments where i can't say what i'm thinking as well, and moments where my kids ask me questions and i just sit there unable to even think or answer them.
I'm so lost and having a horrible time getting my doctor to listen to me and not blow off my symptoms. Anyone have any ideas?
**Post broken into paragraphs by Moderator for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print.**
Comment