I been so bent on denial but it is all driving me crazy....no surprise there huh? Ok here goesssssssss I been really paying attention to my body which I never really have done ever..My headackes of course never go away and this new Topamax generic drug Topiramate has "the sound of silence" constantly in my ears. If anyone understands that. It has me so I dont want to eat.
I have a real problem with my spine C6 and C7 are pressing into my esophagus and pretty much all I have been able to eat for 2 weeks now is watery cream of wheat( I finally get to go to neurosurgeon next month to see if he can take care of that) But have not lost any weight.Don't know if that is good or not. My Neuro never has said Yes I have MS outright and he is finally coming back tomorrow from his 2 week vacation and you can bet your butt I will be sitting at the door when he walks in.
But back to my body...my calves never stop hurting,not so much that I can't walk but still. The past few weeks my legs and back itch on and off more on than off. My back never stops hurting. I dring a half cup of water and spend the next 20 minutes running back and forth to the bathroom and up and down all night. Guess I been doing that the past year just never noticed. Now the past few weeks to I have eye pain that comes and goes but I don't know if that is caused by this Topamax generic med or not.
I have made Dr. appt. but it all is becoming a very stressing vicious circle. My neuro wants me to start on Gilegya but he hasn" reallystraight out said if he believes I have MS or if he just Thinks I have it SSSSSSOOOOOOOOOOOOO he damn well better have some answers when I see him. Ok well if anyone has any feed back I sure could use it. Thanks for letting me vent
**Post broken into paragraphs by Moderator for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print.**
I have a real problem with my spine C6 and C7 are pressing into my esophagus and pretty much all I have been able to eat for 2 weeks now is watery cream of wheat( I finally get to go to neurosurgeon next month to see if he can take care of that) But have not lost any weight.Don't know if that is good or not. My Neuro never has said Yes I have MS outright and he is finally coming back tomorrow from his 2 week vacation and you can bet your butt I will be sitting at the door when he walks in.
But back to my body...my calves never stop hurting,not so much that I can't walk but still. The past few weeks my legs and back itch on and off more on than off. My back never stops hurting. I dring a half cup of water and spend the next 20 minutes running back and forth to the bathroom and up and down all night. Guess I been doing that the past year just never noticed. Now the past few weeks to I have eye pain that comes and goes but I don't know if that is caused by this Topamax generic med or not.
I have made Dr. appt. but it all is becoming a very stressing vicious circle. My neuro wants me to start on Gilegya but he hasn" reallystraight out said if he believes I have MS or if he just Thinks I have it SSSSSSOOOOOOOOOOOOO he damn well better have some answers when I see him. Ok well if anyone has any feed back I sure could use it. Thanks for letting me vent
**Post broken into paragraphs by Moderator for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print.**
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