Announcement

Collapse
No announcement yet.

where is the remittance in this RRMS?

Collapse
X
Collapse
 
  • Page of 1
  • Filter
  • Time
  • Show
Clear All
new posts
Previous template Next
    #1

    where is the remittance in this RRMS?

    I would like just one day. Just one. I don't even care if I feel great, I just don't want to feel lousy.

    Since my diagnosis I has just been having new symptoms and getting worse. I am not a fan. Last week I had a week long migraine that made me miss a whole weeks worth of classes. I am on TWO meds that prevent migraines. I KNOW this is related to the betaseron and MS. I had gone a YEAR without having a migraine that lasted longer than 12 hours. I have had headaches or what I like to call baby migraines really since I started the beta, and now this.

    I have woken up this morning with a KILLER headache. My muscles are all screaming, and I am exhausted. I feel asleep at 9:45ish and woke up at 6:30. I really do hate this disease. I cannot have this, I have to function and have to attend school and live. I cannot stand this. I am tipping my hat to all of you before me, because I think I am going to lose my mind and I am six months in.

    WHERE is my remittance?
    Sasha - dx January 2011; tysarbi, zanaflex, gabapentin, and baclofen
    ~Life is not about waiting for the storm to pass, it is about learning to dance in the rain.~
    Tags: None
    #2
    Assuming that you do have RRMS and not one of the progressive forms, your remission will come! It can take a long time for a major exacerbation to resolve, but it will.

    Getting stressed out about it will only make the wait longer. Anything you can do to calm down and take it easy will help. Hard to do when you're feeling so awful, I know! Have you considered meditation?

    As far as the migraines go, however, if they're related to the Betaseron they may not go away even when a remission finally comes. You might need to switch meds. Have you discussed this with your doctor?

    Hope you start feeling better soon!

    Comment

      #3
      Sasha,

      I too started many of my symptoms around Christmas time, (What a present!). I have added many symptoms including ankle weakness, back pain, weaker grip, ON, tight throat and twitching muscles. I have improved some, but still don't feel like I am in remission. Maybe this is the new norm.

      I would be interested to hear what symptoms the other members experience on a day to day basis during remission.

      Nathan
      Christ now gives us courage and confidence, so that we can come to God by faith. Eph. 3:11 (DX 2/11)

      Comment

        #4
        I had my first attack starting on Xmas day. Just this last two weeks have I flet mostly normal. my arms and legs feel weak and numb a lot and if i overdo it I'll end up limping a bit. I also have some mild vertigo left too but compare to the last three moths of pure hell this is great!

        Comment

          #5
          Sasha, You will feel better it will take time, but you will start feeling better. When I was dx'd 6yrs ago I declined so fast it was horrible. Nov of 2005 I had to go on LOA because of the Ms.

          Dec of that yr I went to go see a neurology specialist and he put me on Chemo therapy Cytoxin. Jan I started to get my strength back and I was starting to get my life back. It did take time, but I was getting better. I also went to talk to a pschologist which helped alot.

          Today since my dx I have had challenges, but me myself as a whole has not change, I learned Ms has not defined who I am I define it. Yes I get reminders of it saying "hello, I am here don't forget me" when that happens I listen alittle because I have pushed myself or I got stressed.

          Sasha, you will get through this it will take time. Listen to your body and read up on everything, because the more you know the better you will be as a whole. Knowledge is power
          ((((((((Sasha)))))

          Comment

            #6
            Hi sweetie,

            I got sick in September 09 and did not truly go into remission until October/November 10.

            I had relapses before but they only took a month or so out of my life. That one was a doozie!

            It will come.

            I added weekly B12 injections to my regime and my fatigue is so much less.

            I also get migraines that have all but let up though when I get one now it is Horrid (today is one of those days).

            All the best!

            Comment

              #7
              I'm guessing you're still in state of shock, fear, grief etc after your diagnosis. I'm sure you do feel awful and genuinely sick, too.
              The stress of it all will be making you feel even worse.
              You will feel better.
              Which, alas, is not to say it won't all happen again in six months.
              I've had ms for 12 years. There were years where I really did feel perfectly fine. Proper remission!
              That's long gone. I feel it every day now.
              Try not to think about it all the time. I know it's very hard not to, and I'm being hypocritical because I get obsessed with the topic when I have a flare.
              You're more than your disease, hard as it is to believe sometimes.

              Comment

              Previous template Next
              Working...
              X