Clinical trial experiences

[roxy118]

I recently started a Phase II clinic trial(BG0012) for subjects with Relapsing Remitting MS in conjunction with beta interferon or Glatiramer Acetrate. My experience thus far has been difficult as I found the MRI more intense than the usual one i take and there is only staff to do the test who is not that that compassionate. I know that this will be a long haul but I am just hoping that the new drug will be beneficial. Just needed to vent and see what experieces others have had.
Roxy118

[wkikta]

Sometimes you just put up with all the junk they throw at you. BG0012 is hoped to be a very effective.

[dolule]

I've been in clinical trials for about 7 years (different drugs) and have had A LOT of MRIs. I was very nervous with the first ones because I am mildly claustrophobic and also because I was worried that I would move. With time and experience, I've become very comfortable with them.
What works for me is just closing my eyes and counting my breaths. I don't try to control my breathing -- just pay attention to it.
When you're resting sometime, try placing your hands on your abdomen and count how many breaths you take in a minute. Then, when they tell you "this one will be five minutes" you can start counting (eg if you take 10 breaths in a minute, you'll count to 50 and that MRI will be close to finishing).
ps If you can find a "restorative" or "gentle" yoga class, I strongly recommend taking it!

[roxy118]

THANK YOU SO MUCH. i WILL THINK OF THIS POST WHEN i HAVE MY NEXT MRI MAY 10TH

[dolule]

You're welcome and best wishes

[sevntwrs]

Roxy118, I am considering joining the same trial (I think). How is it going for you? Any side effects from the BG-12? Which DMD are you currently on?

[ijustcallit]

Is this a placebo trial?

[roxy118]

ijustcallit

No.All those in the trial will receive the medication
Roxy118

[twisterred]

My fingers are crossed for you!