?

[debster197]

O.K. I am on my third day of not being able to walk with my cane. Called the nuero again still no call back. Heres my thing I am taking baclofen, obviously it is not working why am I still taking it. Heres my other thing......
Someone please advise on how you keep going.
Besides the fact that I cant walk right major drop foot plus numbness in legs so they dont just "stride"
Muscle twitches, even had a few in my face today, numbness tingling in legs. Concentration and focus forget about it. This morning me and my coworkers started laughing and my throat just all of a sudden felt real small, then I got scared and felt like I was going to be able to breathe. Had to stop myself from laughing and tell coworkers no laughing today. Voice is harsh and energy level is just shot. I called my gp today just to ask for advice sine nuero isnt calling back.
I walk to and from break and lunch at work 6 times a day. It use to take me 3 minutes each way. Now it takes about 5 mins. I do not walk straight and I look like a drunk. It is hard psychologically as well. Any ideas? Suggestions? Started taking magnesium today maybe that will help. I do not see how people are expected to live this way, I have actually felt disabled for the last three days

[jazzgirl]

It sounds like you may be having an exacerbation.
I'd continue to call the doctor until I got a response!

Feel better, and keep us posted!

[Krysalus]

I hope you feel better soon

I agree with jazzgirl. It sounds like you need to keep after that dr till he answers you! My neuro always took at least a day to get back to me and it drove me nuts.

[debster197]

Well...it's Friday and still no call back from the Dr. And yeah I am defienetly having something. I am actually starting to get get pains in my back, feet and my leg muscles are hurting. I believe it is because my legs arent working so it is throwing everything else off.
So I live in North Carolina and trying to find a "house" neurologist
I was thinking about maybe going to Multiple Sclerosis of the University of North Carolina's Department of Neurology. Anyone from the area with any advice on a good doctor? I guess I am just having a hard time figuring out who is good. Really don't want to waste anymore time.
Today I asked a coworker a ? and forgot the answer in less than 5 mins. I had to reask. I also brought some papers to another a coworker and then the next time I saw them I said did you get your papers, I didnt and still dont have any memory of gicing him those papers. He says I handed them to him personally????? Apparently I also asked my son the same ? three times today, he was a little annoyed. I just apologized

[debster197]

One more thing...yesterday I was having face twitches, not sure if I said this already. I get them around my eyes but I was also getting them by my mouth. And the last couple of days if I don't take my Baclofen "early" enough for the first dosage hiccups are back I use to get the hiccupps everyday I havent had them in a long time, till lately.

[GEM]

I'd go ahead and call the University of North Carolina ASAP since your Neuro isn't doing you a bit of good. Explain to them what's happening to you and that it's a bit of a desperate situation. Maybe something will happen for you.

[0485c10]

I use potassium which i notice when i don't take it in the morning---doc asked if i was interested in ampyra, but i didn't try it--maybe it would help you?

[froggirl88]

another thought

If you have decent insurance, you could go to the hospital. They would at least probally give you IV steroids in case you are having a flare. They will also call your neuro and make him respond.
If he does not respond they will assign you a neuro to handle and follow up. At least that's how they do it here. I Found my current neuro that way.
I would not let myself suffer waiting on that Neuro! Good luck!