Why does this happen??!! (Vent)

[ribbitt513]

I agree

When I was diagnosed I had a co-worker say "You don't have MS, there is no pain with MS". LOL are you kidding me? You can't fix some people. The same person, if I go home because I feel bad and am shaking, "You were fine this morning" like I'm lying. Hang in there. We're all here for you.

[lindajot]

It's obvious by the responses that this is something many of us deal with - how sad is that?!

My neighbor said "the lady down the road has MS and she works and gets around just fine".

I think it's right that most have misconceptions about what MS is really all about - I know that was me, although I wouldn't say unsensitive things - it amazes me.

My husband informed my inlaws of what's going on and they have never once asked me how I'm doing or what it's all about. I'm thinking that's either a good thing because I don't want people "watching"me, or maybe they aren't sure how to respond.

My sister called to share about her fibromyalgia, and my husband told her I'm a hypochondriac - that hurt!

I sometimes SO wish folks could spend just one day in our bodies and truly understand.

[Lendi]

My last boss put on my evaluation sheet that my missing work was causing too many issues in the office. And, something about my health and being in my head.

I still had vacation time and sick leave for the year so I was pretty upset. A co-worker also told me that said same boss "mimiced" my walk at a time when I was doing good too walk. She also complained that I'd be gone too long to have carpal tunnel surgery that they couldn't have me out of the office that long. I had even chosen a quiet time to have the surgery done. I found a different job but it still hurt.