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    MS Newbie

    Hello eveyone. I have been lurking on and off here for over a year, and I must say you all have been a fantastic source of support and information!

    I am a 40 y/o female, and I was dx'd with RRMS last month. I just started on Copaxone and so far it is going well. My main symptom is dizziness that comes and goes a couple times a year (started in 2006), and a flare that lasted a couple of months which consisted of L'hermittes and a numb patch on a leg.

    I have many lesions in my brain suggestive of MS, an abnormal BAER and normal spinal fluid. My first neuro was unwilling to dx MS based on all of this, so we spent the last year with a wait and see attitude. When that neuro relocated to another state, I started seeeing another neuro in the same practice and he made the dx immediately after a follow up MRI (which had not changed).

    My question is how many of you sought a second opinion at an MS clinic, after receiveing a dx of MS from your regular neuro (who you like!)? Was it worth it? I have a nationally recognized MS center about an hour away, and I am considering seeing someone there. I do however plan to stay with my current neuro for my treatment.

    Mostly I just wanted to say hello, and thank you all who are answering questions and offering support to everyone with this terrible disease.

    JSSL

    #2
    First I want to say welcome.

    I don't have anywords of MS wisdom and neuro since I am not yet dx. Although I believe that having a good relationship with your doc is the most important aspect. If your current doc is treating your ms properly and you have a good relationship I wouldn't change.
    COURAGE IS BEING SCARED TO DEATH- BUT SADDLING UP ANYWAY ~JOHN WAYNE~

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      #3
      Thank you for the replt Greg, I appreciate it!

      Comment


        #4
        jssl, hello and welcome!!!!!! my dr was leaning towards ms, but i also have diabetes, which, iguesss, can cause small ms looking lesions. it wasn`t until i had a lumbar puncture that the dx was made "official". no, i did not seek a second opinion at any time, before or after dx. good luck.


        dave
        hunterd/HuntOP/Dave
        volunteer
        MS World
        hunterd@msworld.org
        PPMS DX 2001

        "ADAPT AND OVERCOME" - MY COUSIN

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          #5
          I sought a 2nd opinion from a specialist at an MS clinic, however I did not like my neuro so I switched my care to the specialist.

          Even if you like your doc there is nothing wrong w/2nd opinion. They can confirm the dx & the treatment. For me, I would want the peace of mind that what I believed to be true was true.
          DX 10/2008
          Beta Babe 12/2008-07/2013
          Tecfidera 07/2013-01/2018
          Aubagio 01/18-09/20

          Ocrevus 09/20-present

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            #6
            Hello JSSL and welcome.

            I saw many neuro's while I was in limbo. The one that finally dxed me referred me to a MS specialist whom I like.

            If it will make you feel better by all means seek a 2nd. opinion.
            God Bless Us All

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              #7
              Dave, Toomnyhats and REG53 - Thank you for your thoughts, and for making me feel welcome...much appreciated!

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                #8
                JSSL - Welcome

                JSSL -

                I'm a newbie also, diagnosed on 10 Feb. It's nice to "meet" you. I'm 44 and my primary symptom was vertigo, I've added some spasticity and a little facial numbness, but overall doing pretty good.

                Melissa
                Melissa (dx. 3/22/2011)

                Comment


                  #9
                  Hi Melissa, nice to "meet" you as well! It is nice to hear that you are doing well; I hope we can both continue down that path

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