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    #1

    problems with your joints?

    does anyone else have issues in their joints with MS? My joints have been sort - in particular my hip and knee joint in my right leg - since my flare in December. It will get worse and better - but sometimes it is pretty painful. I have had pain issues in this knee before - but not with the joint. Anyone else have issues with this? My doctor told me today that this is not typical of MS but couldn't say for sure it wasn't MS? I asked him what that "meant" and he really couldn't tell me.

    LOL. Thanks for any thoughts.
    Sasha - dx January 2011; tysarbi, zanaflex, gabapentin, and baclofen
    ~Life is not about waiting for the storm to pass, it is about learning to dance in the rain.~
    Tags: None
    #2
    Yes I do!

    I have been awakened twice by pain in my foot and toe joints the past two evenings. With that said I haven't had my first Neuro appt but will be doing so on Thursday so I haven't been dx with MS yet but all of my SX are consistent with what many others have experienced with MS. Hope you feel better soon. Hang in there.
    DX RRMS 4/22/11

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      #3
      Hi salamandertom

      According to this info on Spasticity from the National MS Society, spasticity can cause feelings of pain and stiffness, in and around the joints.

      I too have stiff, painful joints on occasion. It always subsides after a few days though, thank goodness.

      http://www.nationalmssociety.org/abo...ity/index.aspx

      Take care,
      KoKo
      PPMS for 26 years (dx 1998)
      ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

      Comment

        #4
        I have chronic joint issues that predate the MS... and they have gotten worse since the MS started. Mine aren't clearly MS triggered, but I wonder if they might be due to a related inflammation problem.

        Comment

          #5
          *exactly*

          Koko! that is exactly what it is! I am shocked at how surprised my neuro was and how much he brushed this off as a non-MS thing! I just read that link you posted (thank you thank you!) and it is EXACTLY what happens to me! Grrrr. LOL, He is supposed to be my MS specialist how can he not think of that? So any suggestions as for what to do for this? thanks!
          Sasha - dx January 2011; tysarbi, zanaflex, gabapentin, and baclofen
          ~Life is not about waiting for the storm to pass, it is about learning to dance in the rain.~

          Comment

            #6
            I have pain too.
            Sometimes I can predict rains because I hurt all over (I hated that in my 20's)

            I had it before my diagnosis during my teen years.
            People must have thought it was just me growing up or over doing.

            My Neuro stated that pain and fatigue are patient's most common symptoms.

            Comment

              #7
              I have problems with my hip, knee, and ankle on one leg, but it's directly related to spasticity. Severe spasticity can actually subluxate or dislocate a hip joint.

              Or it can cause contractures at your joints which can result in joint pain.

              http://treatmentsclerosis.com/index....res-spasticity

              Comment

                #8
                joint pain

                I have joint pain also...which confused my docs at first (had lots of arthritis tests, including RA, all come out negative)

                my hips, shoulders, neck ,arms, and hands especially. I never had problems before like this...

                my new neuro told me about spasicity....hurts, bad..
                your horse must be fast cuz' you were haulin' ***** when I passed you!!!!

                Comment

                  #9
                  my hands hurt alot sometimes too! My elbow does occasionally even. The pain can be fairly intense. Tonight it is so bad I cannot even study. I don't like that it is interupting my schoolwork. My teachers are pretty cool, but i have a quiz tomorrow, two actually and I really need to concentrate and pain and concentration aren't really good friends.
                  Sasha - dx January 2011; tysarbi, zanaflex, gabapentin, and baclofen
                  ~Life is not about waiting for the storm to pass, it is about learning to dance in the rain.~

                  Comment

                    #10
                    joint pain

                    I have had bad joint pain over the last few years. Hands hurt real bad especially in the winter. Have joint pain and swelling in both knees, been to a rheumatologist and an ortho said arthritis.

                    Is it MS related? I think so. Once you have an autoimmune disease you are prone to others.

                    The spasticity also contributes to the pain and stiffness in all joints.

                    We got a hot tub this year and it helps with the muscles but ice helps with the hands and knees.

                    Be well
                    Linda

                    Comment

                      #11
                      My left knee hurts off and on, as does my right hip. I've had both of them x-rayed, but the doctor can't figure out what is up.

                      However, I haven't been diagnosed with MS, and am actually going through testing for Celiac disease and/or gluten sensitivity, which can mimic MS symptoms AND cause joint pain. (Have you been tested for it?) I go to the GI doctor tomorrow, and I'm hoping and praying that this is the diagnosis I've been waiting for the last five years.

                      Even if you've been tested for Celiac and it was negative, a lot of people with MS benefit from a gluten-free diet. It can really help alleviate symptoms in a lot of people. (Wouldn't hurt to try it!)

                      Hugs,

                      Lisa
                      Joy is not the absence of suffering. It is the presence of God.
                      Cut aspartame from my diet in 2012 and my symptoms have slowly disappeared. Interesting!
                      Alpha Lipoic Acid (200 mg) + Acetyl L-carnitine (1,000 mg) = No more fatigue for me!

                      Comment

                        #12
                        OMG, Hip Pain and left Knee pain are total concerns for me...My 2nd nuero said nope can not be an MS symptom..I have had Bone Scan, tests for rheumatoid factor that have come back negative. I also had one spell, were my left knee became so stiff it was hard to bend..At the same time I had my most PAINFUL lower back spasm that had me bent over at a 45 degree angel. I was treated with steroids and both cleared up...But I was still told NOT an MS symptom..My knee gets worse some days after a walk..I will go to sit on the couch with bent knee and will have to jump up quick as to painful to bend..and sometimes it is ok...

                        Comment

                          #13
                          I was diagnosed with MS August 2010, I too have severe nerve damage pain in my legs and my arms down to burning pain in the palms of my hands and my Neurologist seems more complexed with my pain and stiff joint issues and instead wants to talk about numbness that doesn't seem to be as big an issue as the pain, I'm getting frustrated because I don't think he's hearing me, he may be listening but I wonder if he hears me! I currently take Neurontin for the pain but am unable to increase the dosage like my Neurologist wants me too because of the side effects of peripheral swelling. Any suggestions?

                          Comment

                            #14
                            Originally posted by snagy17 View Post
                            I was diagnosed with MS August 2010, I too have severe nerve damage pain in my legs and my arms down to burning pain in the palms of my hands and my Neurologist seems more complexed with my pain and stiff joint issues and instead wants to talk about numbness that doesn't seem to be as big an issue as the pain, I'm getting frustrated because I don't think he's hearing me, he may be listening but I wonder if he hears me! I currently take Neurontin for the pain but am unable to increase the dosage like my Neurologist wants me too because of the side effects of peripheral swelling. Any suggestions?
                            I had pain so badly in one of my arms the other night I took a vicodin I have for migraines to try and help. It didn't touch the pain. I am sorry to hear you are dealing with the same sort of pain as me. My neuro also just brushed aside my joint pain, even when I pointed it I had had NO issues with this preMS, and kind of skipped it. As if my pain was just something to be ignored. As if my quality of life was just skipable. LOL. I don't have any suggestions except to keep advocating for yourself! We should not have to live in pain!
                            Sasha - dx January 2011; tysarbi, zanaflex, gabapentin, and baclofen
                            ~Life is not about waiting for the storm to pass, it is about learning to dance in the rain.~

                            Comment

                              #15
                              I get pain in my left hip that is game ending at times. my right hip and both knees to a lesser degree. I encourage everyone to find a neuro that listens and allows you to drive the discussion about your SXs

                              Comment

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