I was on Copaxone for 18 months and other than a few immediate post injection reactions and some normal site reactions from time to time, I seemed to be tolerating the med.
At 18 months, on Dec 7th, I had an IPIR. The next day, the site (my left hip) became painful, like a spider bite. It continued to get worse through the day. I ended up in urgent care with the worst pain of my life! (and I had three natural child births) I felt like someone had pushed me up against a hot stove and held me there. From my hip, through lower back and down left leg and foot, my pain grew worse. Any movement, no matter how slight, set it off. Air hurt it.
The urgent care doc did research and found only one other case like mine. It was NOT an infection and I did NOT inject in a vein. It was treated and dx'd as a drug reaction. My neuro called the next day and told me to continue Copaxone but not to inject the left side anymore.
A few days later, the site changed...and the long and short of it is that it turned out to be a CHEMICAL BURN. It burned me internally then created an open wound the size of a quarter. I was taken of Copaxone and sent to wound care. It took a month of wound care, going two to three times a week, before it healed.
I have numbness and pain in my hip still. Real bummer is that my left side was my good side. Now I don't have a good side.
HAS ANYONE ELSE HAD THIS REACTION? It was pretty intense, to say the least.
Now that the wound is healed, my neuro wants me to go on Gilenya. I've started the testing for it
LA
At 18 months, on Dec 7th, I had an IPIR. The next day, the site (my left hip) became painful, like a spider bite. It continued to get worse through the day. I ended up in urgent care with the worst pain of my life! (and I had three natural child births) I felt like someone had pushed me up against a hot stove and held me there. From my hip, through lower back and down left leg and foot, my pain grew worse. Any movement, no matter how slight, set it off. Air hurt it.
The urgent care doc did research and found only one other case like mine. It was NOT an infection and I did NOT inject in a vein. It was treated and dx'd as a drug reaction. My neuro called the next day and told me to continue Copaxone but not to inject the left side anymore.
A few days later, the site changed...and the long and short of it is that it turned out to be a CHEMICAL BURN. It burned me internally then created an open wound the size of a quarter. I was taken of Copaxone and sent to wound care. It took a month of wound care, going two to three times a week, before it healed.
I have numbness and pain in my hip still. Real bummer is that my left side was my good side. Now I don't have a good side.
HAS ANYONE ELSE HAD THIS REACTION? It was pretty intense, to say the least.
Now that the wound is healed, my neuro wants me to go on Gilenya. I've started the testing for it
LA
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